#23801 07-17-2007 11:14 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | Well, I suppose I am officially a survivor!
Saw my surgeoun yesterday and he seems to think the worst is behind me, painwise and almost every other thing. He said that there was very definite clear margins and it seems to be healing good. He thought that the bleeding was probably something like a scab that broke free....more a case of bad luck than anything else!
I have one more follow-up visit planned with him for 2 weeks but he is confident that it is pretty much done now!!!
Lets hope so.
My journey has probably not been as long or arduous as many peoples here, but it has been difficult. I will certainly stay on these forums as a SURVIVOR!
I would sure like to thank everyone on here for all your thoughts and kind words.
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
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#23802 07-17-2007 11:23 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#23803 07-17-2007 11:43 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Chris, I too have felt that I was more fortunate than many here, but it has been heartwarming to receive the sincere congratulations from those who are still fighting. So never feel "guilty" that your circumstances weren't as difficult as those of others. We still have to continue to learn, and to be vigilant, and to believe in our health and to be thankful for our good fortune. I am truly happy for you. I have my 18-month checkup in two weeks. Until then, I refuse to update my signature. I look forward to coming home from that checkup and making that change...."Cancer-free at 18 months!"
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#23804 07-17-2007 12:17 PM | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | That's AWESOME Christopher!! Colleen, It won't be very long, I'll be expecting to see that updated signature line! No excuses, but I haven't posted lately, been caught up in the workforce once again. (what a problem to have, thank the good Lord!!)
Regards,
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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#23805 07-17-2007 12:29 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | As I told someone else on these boards a few months back -- rather than feel "guilty" about your circumstances, approach it from this perspective: "Early detection saves lives. I'm living proof!"
I know what a relief this is for you.
All the best --
Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#23806 07-17-2007 12:51 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Christopher, what good news! And please remember that your positive outlook will do much to halp people here, so stay aboard. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#23807 07-17-2007 04:01 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Christopher,
Glad to hear that things have calmed down, the margins were clear and that you will hang around here.
Keep us posted as you progress to total healing and further good reports.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#23808 07-18-2007 02:36 AM | Joined: Jun 2007 Posts: 35 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 35 | As far as total healing goes I still have a way to go with that...the pain isnt slowing up quite as well as I had hoped and the eating isnt quite as good as I was hoping also.
As I am a truck driver I have decided to give it another week off and let things heal up more get my strength back up and get off the narcotic pain meds!!!
Take care all!
Dx:06/08/07 SCC left Lateral tongue Stage I/II
Tx: 07/09/07 Partial -10% approx. of tongue taken round 1cm x 3cm No rad/Chemo deemed necessary.....ex smoker
07/17/07 CLEAR MARGINS!!!
05/15/10 Sore has returned and will not leave.back to see ENT 05/17/10
04/07/11 Lump on neck.....ENT on 04/12/11
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#23809 07-18-2007 03:18 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Great News Christohper!
Now it is "your turn" to give out the kind words and encouragement. I like to call it "paying forward".
I would also like to thank you for being a responsible "Trucker" for knowing when to drive and when not to drive.
In one sentence "I am a truck driver....." you probably made a few people think twice about driving while on meds. I called a neighbor last week to come pick me up as I "could feel" the affect of my meds. on my driving, although only 3/4 miles from home.
I could have walked but hot sun and radiation do not go together.
Thank You for keeping "our" roadways safe. Petey
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#23810 07-18-2007 12:45 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Christopher, I also want to thank you for being a responsible driver and cheer you on toward getting well soon. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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