Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#23632 07-02-2007 03:56 PM
Joined: Jul 2007
Posts: 2
Member
OP Offline
Member

Joined: Jul 2007
Posts: 2
Hello, I wanted to say hello and introduce myself. I am a 31 year old cancer survivor. I am very new to this and thought I would try to speak to others that are going thru this emotional experience.I am not sure where to start. I was diagnosed with stage 3 cancer in December of 2005. I had 3 surgeries to remove the cancer and my tonsills. I did 6 months of radiation and chemo. It was the worst experence of my life. I am still in alot of pain and my body is not the same. I do not know anyone survivors and I am hoping thru this forum I can see light at the end of the tunnel. I just want to know that there is hope for me. God Bless :p

#23633 07-02-2007 05:08 PM
Joined: Apr 2006
Posts: 794
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 794
Rochelle, you are in the right place. You will find friends here, and people who have endured what you have, and people whose experiences are different but who still care about you and have good advice to give. And they will need support and information from you, too. You will have the chance to help someone else along the way. Stay here. You will have responses that help.


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
#23634 07-02-2007 05:20 PM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
Hi Rochelle,
and welcome to the forum. I am a 4+ tonsil cancer survivor myself. It was a miserable expereince but I am doing pretty well today. I hope that you ultimately have the same experience. What kind of pain are you still having?


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#23635 07-02-2007 11:08 PM
Joined: Feb 2007
Posts: 176
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Feb 2007
Posts: 176
Rochelle,

We share the exact same diagnosis. Mine was right tonsil with 2 lymph node involvement. I too had a total of 3 surgeries including a modified neck disection.

In August I will celebrate 2 years cancer free. My Docs tell me that 80% of recurrances happen in the first 2 years and 90% in the first 3. In other words, there is reason for a bit of celebration at the 2 year anniversary (you are close).

I have a bit of stiffness in my neck from the surgery, but do not have any real pain. What is it that you are having issues with? I was treated in NY at Beth Israel, where were you treated? Hang in there, we will all help each other thru this.

Regards,
Rob


6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit)
3-9-09 last of 30 HBO treatments.
#23636 07-03-2007 12:04 AM
Joined: Mar 2007
Posts: 525
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Mar 2007
Posts: 525
Welcome Rochelle

There is indeed light at the end of the tunnel! You have been through a lot but you are among us.

I must leave for work now and I have a 10:45 AM RO appnt. But as for your main question of finding survivors, there are plenty here.

Read in the following two forums. "Survivor Stories" and "OCF Cancer Blogs".

Looking forward to seeing you on the OCF. Fire away with any and all questions.

We all walk together on this journey.

Sincerely, Petey smile


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
#23637 07-03-2007 01:23 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Rochelle,

As you can read below my signature, I was a Stage IV, base of tongue with mets to 2 nodes. Surgery was not recommended and I went thru 7 weeks of concurrent rad and chemo. I am 10 months out of treatment and feeling completely back to normal. Hope this site will provides you with some answers to your pain issues.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#23638 07-03-2007 12:40 PM
Joined: Jul 2006
Posts: 68
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jul 2006
Posts: 68
rochelle
hi welcome. i am a 3 yrs survivor. i had scc stage 2 on my tongue removed part of it and nodes they were all clear.going on 4 looking pretty good so far.this is a great place so welcome.
friends
lynn


linda anderson
#23639 07-03-2007 12:41 PM
Joined: Jul 2006
Posts: 68
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Jul 2006
Posts: 68
rochelle
hi welcome. i am a 3 yrs survivor. i had scc stage 2 on my tongue removed part of it and nodes they were all clear.going on 4 looking pretty good so far.this is a great place so welcome.
friends
lynn


linda anderson
#23640 07-04-2007 02:06 AM
Joined: Jan 2006
Posts: 107
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Jan 2006
Posts: 107
Hello and goodmorning Rochelle,
I am an 18 month survior of stage 4 cancer to the tonsil and lymph nodes. I had 39IMRT radiation treatments, 3 rounds of chemo a modified neck dissection and 39 rounds of HBO for osteioradioncrosis. I must say i feel great and have minimal effects from cancer or its treatment. I loved readind robroasters reply I am getting close to that 2 year plateau and I am sure that i will get there. I always that I was going to beat this and I still am convinced. The Glass is always half full , never half empty. I believe that attitude, although not a mircle "drug" is hughly successful with great results. Hang in there my dear, fight the good fight, lean on us when you need to and offer your support to others who will come after you.
Lenny

#23641 09-08-2007 05:28 AM
Joined: Jul 2007
Posts: 2
Member
OP Offline
Member

Joined: Jul 2007
Posts: 2
Hi Everyone,,,,,,

Well I am still here, Thank God! Well I want to tell you your stories give me hope. On wed next week my doctor thinks something is not right and I have to go do another PET scan. I feal like this will never end. I am so young and want to live life but I am consumed with anxiety over my cancer. I want to hear the word REMISSION! I also want to ask does anyone have these side effects? I have lost so much weight, I have little taste buds, My bones in my arms and legs hurt bad, I always have dry mouth, I get tierd easy, and last I have 3 great amazing young boys who have to live with my ups and down with this cancer. Thank you so much for listning. Rochelle

Page 1 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5