#23396 06-17-2007 07:17 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Laura & Oscar
How did the SS call go? I hope my quess is wrong. But having spoken with them on Friday myself, I added another WTF notch in my belt.
I hope you fared better. Keep us posted. I sent Andy Wise another e-mail....? 3 e-mails.....no response?
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#23397 06-18-2007 03:46 PM | Joined: May 2007 Posts: 41 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2007 Posts: 41 | Had a real nice case worker, said she would everything she could to get him approved. But..on the other subject..had appt at UT College of Denistry in Memphis. We were told that we had to be a resident of their county to get help...heck they knew we weren't when we made the appt. Dentist said if he could he would have done surgury today, free of charge, but his hands were tied. He said it is all political, and not having a pocket of money, makes a big difference. Where are all these dentists that do charity work around here??? I am to the point of calling them all in phone book and begging for help. I am TIRED of watching my husband go through this and like no one gives a shit, because we are hard working, BROKE American's, I WILL NOT stand back and watch my husband go down any more than he has and give up on his life and our family's life.
Husband age 48, diagnosed 5/10/07 with stage 4 mouth cancer, surgury not an option, teeth removed 6/21/07, 5x wks of rad with Cisplatin 1x week for 7-8 week course starting 7/10/07. Update 02/25/08 right maxillectomy and right infratemporal fossa resection
| | |
#23398 06-20-2007 09:34 AM | Joined: May 2007 Posts: 41 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2007 Posts: 41 | Well Petey was right again!!! Raising hell is what it takes to get someone to listen. We have an appointment at 10 in the morning to have 21 teeth taken out...will be knocking him out. Yes his teeth are in awful condition and this must be done..NOW. We have another appt July 2 with radiologist to set treatment plan in place. So the ball is rolling..slowly..but getting there. Thank you all for your support and help, will post more after procedure tomarrow. Bless you all and a xoxo for you Petey, your the best!!
Husband age 48, diagnosed 5/10/07 with stage 4 mouth cancer, surgury not an option, teeth removed 6/21/07, 5x wks of rad with Cisplatin 1x week for 7-8 week course starting 7/10/07. Update 02/25/08 right maxillectomy and right infratemporal fossa resection
| | |
#23399 06-20-2007 05:22 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Thank You! You made my heart sing! I am not alone here! Many have done the same for others. That is why the OCF is so woundrous. I am so proud of You for your own resolve. Remember to get an RX for pain before you leave the dentist. Something "strong". Percocet won't due! Also, give Oscar and old pillow and pillow case as he will bleed for a day or two while sleeping. Ask the Dentist for an RX for or Carnation Instant Breakfast VHC. Ensure is another good product to use for the first 3 to 5 days. Try Carnation Instant Breakfast VHC. It has 560 nutritional balanced calories in a 8 oz can and will cut the misery and the time in feedings. You order it thru your pharmacy dept and some have suggested that if you get a prescription for it, your insurance company will pick up the tab. I only pay about $32.00 per 24 can case at Walgreens. That's only $5.00 a day for 2000 calories. Click on this link: http://www.nestle-nutrition.com/family.aspx?objectID=86E49EB3-BE25-4B16-81D7-235E6F6E5183 Under the PURCHASE PRODUCTS tab, select FIND A PHARMACY NEAR YOU. Under the PRODUCT NAME pull down, select Carnation Instant Breakfast Lactose Free VHC and fill in your zip code and they will give you a list of pharmacies that carries it. (Posted by Dr. Jerry Wilcks DDS) We are all glad you can now post in the "Currently in Treatment" forum. Kep us posted. Petey 
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#23400 06-21-2007 01:56 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Petey,
I am Mr VHC. If Jerry posted it he stole it from me, which I doubt. Just to set the record straight. LOL
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
#23401 06-21-2007 03:50 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello David. I stand corrected! All the jargon here is sometimes confusing for me?  VHC, HPV, VHS, VCR, HBO and especially CRS! I am merely a rocket scientist and never professed to being a brain surgeon
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#23402 06-21-2007 10:19 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Apology accepted.
What is CRS anyway?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
#23403 06-21-2007 12:57 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | ...lol...CRS ...can't remember s***! me too!
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
| | |
#23404 06-22-2007 02:19 AM | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | CRS . Chemobrain ...
Difference???
Seen on a tee shirt:
I have ChemoBrain....What's your excuse?
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
