#23298 05-28-2007 04:04 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi David,
I really don't have anything to add to what has already been said except to welcome you and wish you good luck with the rest of your treatment.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | |
#23299 05-28-2007 04:37 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Welcome David! There is something to be said for our changed perspectives after cancer, we seem to appreciate what we have so much more.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#23300 05-28-2007 11:05 PM | Joined: May 2007 Posts: 22 Member | | OP Member
Joined: May 2007 Posts: 22 | Thanks Jerry and Minnie. I'm glad to be part of the group. David
Age 60, SCC Right Tongue Base
DX - CT scan 4/9/2007
Tongue biopsy 4/19; Neck diss 5/8
T1N2bM0G3
IMRT x48 [2/day] to start 6/7
w/ 5-FU, hydroxyurea & Erbitux
| | |
#23301 05-29-2007 02:23 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Welcome, David. Lots of great information here, which is really useful when coming up with questions to ask your treatment team.
I am in the middle of treatement for BOT SCC right now, and so far (2 weeks in), it is doable. Annoying, but doable. The waiting for treatment to start is hard. Set goals for yourself, reward yourself and get plenty of rest. Also, fluids, fluids, fluids. I thought I was drinking a lot, but you really need to pile on the liquids. I am still eating everything (though it all tastes the same), which I attribute to lots of hydration.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | |
#23302 05-29-2007 06:51 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Welcome David
your on the starting grid and ready to go and this site will give you all the ammunition you need to beat this disease to the finishing post
Good Luck
Liz in the UK
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | |
#23303 05-29-2007 12:00 PM | Joined: May 2007 Posts: 22 Member | | OP Member
Joined: May 2007 Posts: 22 | Many thanks, Jeff and Cookey. I really appreciate the advice about pounding the fluids, and your very encouraging words about the treatment. I have been reading lots of posts and am really glad to have found this Forum. All best, David R
Age 60, SCC Right Tongue Base
DX - CT scan 4/9/2007
Tongue biopsy 4/19; Neck diss 5/8
T1N2bM0G3
IMRT x48 [2/day] to start 6/7
w/ 5-FU, hydroxyurea & Erbitux
| | |
#23304 05-29-2007 12:17 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Well, David, has it dawned on you that you are going to be so busy reading and answering posts that you won't have time to be too sick?  Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#23305 05-31-2007 06:00 PM | Joined: May 2007 Posts: 39 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2007 Posts: 39 | Hi David;
I'm pretty new too, and at first I was overwhelmed at the response from this forum's members. They really helped me feel comfortable about having the disease (if that makes any sense whatsoever...) and sharing my situation with others. Before long, I felt I had become part of a substantial force that had harnessed the collective mental energy of thousands of cancer survivors who were focused on a common objective.
After reading many posts and replying to a few, I realized how therapeutic sharing information and trying to help others could truly be.
So even when you are looking for help, you are, in turn, helping someone else. A form of perpetual motion.....?
Welcome, and best of luck with your treatment !
JT2
Age 55 at Dx,smoker 30 yrs ago, drinker 8 yrs ago; Stage 4 Squamous cell carcenoma T4a N3; 35 radiation tx, 3 chemo w/ Cisplatin, radical neck dissection,40 hyperbaric dives pre-surgery. Clinical remission since May 2006; Update: declared cancer free July 16, 2010! Miracles can happen...
| | |
#23306 05-31-2007 06:31 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | WELCOME DAVID,
You will find much support and many answers to your questions on here. I didnt have Rad so I cant answer any of those questions, But I am def always here to listen and answer any that I can !!!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | |
#23307 06-01-2007 01:23 AM | Joined: May 2007 Posts: 22 Member | | OP Member
Joined: May 2007 Posts: 22 | Thanks for the warm welcome , JT2 and Shar. Once I got over my initial hesitation it's been great being connected to so many people who understand what's happening. David R
Age 60, SCC Right Tongue Base
DX - CT scan 4/9/2007
Tongue biopsy 4/19; Neck diss 5/8
T1N2bM0G3
IMRT x48 [2/day] to start 6/7
w/ 5-FU, hydroxyurea & Erbitux
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
