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Joined: May 2007
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redbus1 Offline OP
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well 5 more radx and 2 Erbitux, No side effect from the cemo part yet. YEA. Everything else is going ok lost only 3 more pounds since the decision not to have the peg tube put back in still able to swallow the 4 cans of Carnation VHC breakfast drink and mixing it with whole milk and chocholte/strawberry syrup is working. 20 oz working out to be enough calories to mantain weight so far, It finnaly looks like light at the end of the tunnel. Just wish mouth was not so sore and raw. But I guess that is why they say you have to battle the cancer. Thanks to all

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Hi Redbus,

Sounds like you are doing well...I'm happy for you that you are nearing the home stretch.

Did you get a rash from the Erbitux? My husband has it all over his face, top of head, stomach and back. We have tried a variety of creams as the rash causes him some discomfort...I am curious if that was an issue for you and if there was a cream that you preferred.

Margaret


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
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redbus1 Offline OP
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So far only place of rash is on chest, or so I think Have not checked head, not been a proublem so far but will keep you informed, what did you use for rash

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ccw Offline
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Margaret,

Regarding the Erbitux rash (i.e., pimples), I had it very bad, even going inside my nose - made the radiation mask very uncomfortable.

The final resolution was daily steroids and oral antibiotics, which were very effective (you can find the specifics on one of my previous posts). I had an antibiotic cream, but I don't think it was very helpful and ended up not using it much.

Best wishes,

Chris


SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
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My husband has been on both antibiotics and steroids but it didn't seem to help. It's tough when they aggrevate that skin that is under the mask.

Now he is using Biofine. It's an Rx burn creme. He's using it because the pimples on his face have turned into very, very dry patches that are also uncomfortable.

I thought it was only going to be a cosmetic thing...who wants a pimple-y rash when they are in their 40's? But, it was a little more painful than he anticipated. Manageable pain, but hard with the mask.

A humidifier also seemed to help a little too. Although the rash is clearing up on his face...his back and neck are almost one gigantic rash.

Chris, how are you feeling now...9 months post treatment?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
Joined: May 2007
Posts: 17
redbus1 Offline OP
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Margaret

I checked the scalp and yea I have it their, I went for treatment today and ask them what I should do. They said the best thing they have found is, Going to sound strange, but they said use head and shoulders as a body wash in all the areas of the rash and to make sure you do not rub it dry that you pat the area dry, They also sais that they do have some creams on the market, but this has had the best results for their people. They also said that they have had to skip a treatment before because of the rash, to give the skin a chance to calm down, but not to stop, because it is a good treatment, Well hope this helps. I know I will be trying it on my cheast, back and head, good luck and God Bless

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JAM Offline
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Head and Shoulder's Shampoo gave John relief from the rash [and he also had to skip a tx or 2 during his Erbitux, but he was on it for over 7 months. He was also told to NEVER rub his skin dry but to pat it. amy in Oz


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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I've picked up the H&S shampoo...thanks, that isn't something I heard from his medical team. His rash is really settling down now at the end of week 5. He has 2 more weeks to go...does the rash settle down and flair back up...or, when it goes down does it stay down?


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
Joined: Apr 2005
Posts: 2,676
JAM Offline
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Margaret, John's only went away when he stopped taking Erbitux- maybe someone else has a better experience. Amy in oz


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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