#22825 04-15-2007 04:54 PM | Joined: Jan 2007 Posts: 50 Supporting Member (50+ posts) |  Supporting Member (50+ posts)
Joined: Jan 2007 Posts: 50 | Hi,
I'm glad this came up. I thought fluoride treatments were something of necessity that had to be done daily for the rest of our, hopefully, very long lives. Isn't that right? I didn't think it was an occasional thing to be done once in a while.
My husband will finish his rad therapy tomorrow.
Throughout his therapy there were 2 nights when he just didn't want to do it and it kind of bothered me. I was going to call the dentist and check on it, but since it came up here, I thought I'd get some of your feedback.
Thanks.
Vicki
Care giver for Stage IV Base of Tongue TXN3M0
Neck Dissection 1-9-07
IMRT & 8 weekly Cisplatin
2/20/07 - 4/17/07
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#22826 04-16-2007 08:33 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jerry,
I was told something similar to Karen in that the acidic foods that are often sour are more damaging after radiation.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#22827 04-16-2007 08:49 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Thanks for all your feed back and luckily I have no problems, just wanted to see long term what everyone is doing and successes they have had to share what works so I can ensure I'm going down the right path.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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#22828 04-16-2007 10:38 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Gary,
Not to beat a dead horse. One more point of clarification. Calculus is calcified plaque. That is dead plaque. Plaque is a living substance made up mostly of bacteria. So the calculus does come from the plaque and there is always plaque on top of the calculus. However, before plaque calcifies and it is in it's early stages, it is just a film and cannot be detected on x-rays.
With all the knowledge that you already have, now you can probably pass the dental exam.
Ed,
I never thought about it from the acidic point of view which now makes it very obvious. We spend so much time telling our patients to limit sweets, that we develope tunnel vision. Thanks to you and Karen for the follow-up.
John,
Happy to hear that you are not having problems. You must be very faithful with your homecare. Keep up the good work.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#22829 04-16-2007 04:12 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi John, I am perhaps going to catch flack for admitting that my teeth are holding up well in spite of the fact that I have not been using floride very often. I do see the dentist every 6 months. So far my dental coverage dosen't get me in any more often than 6 months.
As said, my teeth are holding up well with brushing 2-3 times a day. I feel the toothpaste with tartar control works well.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#22830 04-17-2007 02:19 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Mark,
Happy to see you back. Have been meaning to email you. Hope all of you is well, in addition to your teeth.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#22831 04-17-2007 03:17 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Mark... and I thought you had passed away, but it turns out you were just in Minnesota. Good to see you back 
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#22832 04-17-2007 05:10 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Brian, Good to see you too....
Really, there are worse places than Minnesota, I mean check out N and S Dakota for instance, and then there is Wisconsin they couldn't even keep first place in cheese production. Of course Iowa is only there so that candidates have a place to start that really doesn't matter.
I just realized this will be my 1200th post here and I guess it should be more memorable and profound. I didn't think I'd be away from here so much. I'll post a note in the general forum (or survivor forum) to fill in the last 6 months. I am sad to see how many new faces there are here since I took my sabbatical.
Jerry, feel free to e-mail any time.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#22833 04-18-2007 02:18 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | I think this is the first time a saw Brian show his sense of humor. I'm sure we all have one, but unfortunately most of the time, we have to concentrate on healing words. Brian I owe you a phone call or at least an email. I got your message yesterday. I have to get my photos from the walk on a CD and out to you this weekend.
Mark, congratulatons on you 1200th post. It is quite remarkable (get it re-MARK-able) and can you imagine if you hadn't taken 6 months off, what number you would be at. I still appreciate the hour you spent on the phone with me 2 years ago when I was going through the healing process.
You can count on an email within the week.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#22834 04-19-2007 01:57 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Jerry,
I must admit that those emails you sent to me are fantastic and really worthy of seeing. It will be nice if there are more members who want to share these mails to make their life more interesting and enjoy a sense of humor that many are missing when fighting the battle.
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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