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#22765 04-05-2007 04:20 AM
Joined: Mar 2007
Posts: 52
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Supporting Member (50+ posts)

Joined: Mar 2007
Posts: 52
Sorry, but trying to learn all I can


Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX

March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma

Now taking Thyroid pills for side effects of Rad Treatments

And Life Goes On...
#22766 04-05-2007 05:25 AM
Joined: Jan 2007
Posts: 108
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Joined: Jan 2007
Posts: 108
Here is a link to the information on the main Oral Cancer Foundation site.

http://www.oralcancerfoundation.org/dental/tube_feeding.htm


T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
#22767 04-05-2007 05:42 PM
Joined: Apr 2005
Posts: 2,676
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It is amazing that just when you thought you were fairly well informed about a subject, you read something new. I just read the link above to "feeding tubes" and was surprised to find out that the "average life" of a peg tube was 6 months! No one ever told us that- and in fact , the 2 different ones John had lasted much longer.
Ann Marie, I am in the "pro" camp for pegs. His kept him from haviang to go to the hospital on an emergency basis and made his life easier in terms of meds and nutrition. Keep asking questions. Amy in the Oz


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#22768 04-06-2007 11:57 AM
Joined: Feb 2007
Posts: 168
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Joined: Feb 2007
Posts: 168
I didn't have one but I never really had suffered from nausea. The nausea that came with the chemo caused me to loose alot of weight. I think I have lost a total of 30lbs at this point. My weight has stabalized but I still drink all of my meals. If you have trouble with nausea or are sensitive to throat pain or don't have an extra 30-40lbs to play with I would get a peg tube before treatment starts. Once you start it is risky because of infection with a weakened immune system. There are times like this week that I wish I had one just so I didn't have to make myself drink so much ensure and CIB. Most people are really glad they got one, but some do have a little trouble with them. I think there is quite a bit experienced info on that subject as well. Good Luck 2007. :-) Lee


Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
#22769 04-06-2007 12:23 PM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Joined: Nov 2006
Posts: 2,671
There's also lots of info here (OCF/Google search):
http://www.oralcancerfoundation.org/searchresults.htm?cx=015422755131303034108%3Ao3fylifwmag&cof=FORID%3A11&q=PEG&sa=Search This link has lots of patient stories and comments from OCF site. My son did not have a PEG and he really had a rough time swallowing and lost lots of weight. There were times when I wished he had gotten one, but he did get through the difficult days and doing great, now.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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