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#22626 03-18-2007 10:46 AM
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glenda Offline OP
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Anyone dignosed with tonsil cancer? I have finished 35 rad treaments several months ago but still have lotsa question. confused


glenda
#22627 03-18-2007 11:20 AM
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no i had tongue cancer i prayed alot that helped me and my husband ,kids and grandkids r still hanging in there with me i hope after all this u will beable to sit back and take it easy for a bit. i was very sad too i still get that way when i can't talk right sometimes because part of my tongue is gone but it's ok i'm hanging in and u will too .i'm in akron ohio
lynnlynn


linda anderson
#22628 03-18-2007 11:51 AM
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Glenda
I was diagnosed and treated for tonsil and neck cancer in 2006. I completed treatments in November 2006 and I am currently in recovery mode.

I am still experiencing side effects from the treatments and looking for some answers as well. But I will attempt to answer any of your questions that I can

joe


67 yr male. Dx Aug 06 with Stg 4 (T1N1M0)-L-Tonsil & 2 of 18 Nodes left neck positive. Cause HPV 16. Surg 15 Aug and Tx began 16 Oct--IMRT six weeks (5d/wk) and weekly Chemo (cisplatin and Erbitux)6 weeks. Comp treaments 11-27-06
#22629 03-18-2007 01:36 PM
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i am operating from my wife's page, brendaf. my name is sam. i am not a whiz with a computer. i was diagnosed with tonsil ca but it took them almost a month to find it. a lump in my neck started the ball rolling so to speak. i had 37 radiations and 7 chemos in march/april 05. i was stage 3. they tell me it is different for everyone but i am sure there are more similarities. over and out

#22630 03-18-2007 02:45 PM
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Hi Glenda, there's a lot of tonsil cancer patients here including my husband Jack who completed chemoradiation in June. His tumor was caused by the HPV16 virus and is participating in the clinical trial at Johns Hopkins for the vaccine to prevent recurrence.

It took him several months to feel remotely like himself but he feels pretty good at this point. His swallowing got a lot better once he hit the 6 month mark, and he's one of the people who had improvment in dry mouth from acupuncture - it doesn't work for everyone. Are there specific questions you have?

Regards JoAnne


JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
#22631 03-18-2007 03:57 PM
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Hi Glenda,

I have tonsil cancer along with soft palate and BOT. Had surgery on 02/13. Starting Chemo/Rad this Wednesday for 7 weeks. If I can be of help, let me know.

Jon

#22632 03-19-2007 04:06 AM
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Glenda,

I am a tonsil cancer survivor (3 years). Read below for history.

Please feel free to ask anything. I will be happy to help.

Thanks,
-rh


SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
#22633 03-19-2007 02:50 PM
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I had tonsil cancer and I am going through radiation treatments now(33). If I can answer your questions I will and if I can't I bet we can find someone who can.

Jon, I guess we are on the buddy system. I start mine on wed also.


Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 smile
#22634 03-19-2007 05:30 PM
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Talbil,

Will send you an email. Maybe we can share our day by day fight.

Jon

#22635 03-20-2007 05:56 AM
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Hopefully I will be starting 7 weeks of radiation therapy (with chemo wks 1-4-7) late next week. Had tumour from left tonsil removed 12/14 and left tonsil removed completely 1/29. Firstly I have an exploratory on Monday 3/26 to ascertain jaw movement restriction and interference with tongue nerve.
It is only now as my treatment is nearing that I have learned the art of waiting!

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