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#22555 - 03/14/07 07:38 PM Abbreviation questions
Pete60 Offline
Member

Registered: 03/11/07
Posts: 24
Loc: Austinburg, Ohio
Just a quick question about the info at the bottom of replies. Where on the site can find the abreviations used so I can add this info to my profile. I have figuered out That Tx is treatment and Dx is diagnosis. IMRT has be stumped.
I also want to thank all who participate is this site, as it is becoming a big help to me and my wife. It is also providing info and comfort to my daughters who live in Columbus, Ohio and Poquoson, VA. They think that good old pops will sometimes try to be the tough guy and not let on what is really happening.

Thanks again,

Pete60
_________________________
SCC lf tonsil. Tx started 03/07/07,39 rads,8 docetaxel & 4 bevacizumab. Re-occured 02/19/08 back of throat. Tx35 rads 8 chemo. Tx started 05/05/08. PEG re-inserted April,2007.

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#22556 - 03/14/07 09:17 PM Re: Abbreviation questions
sharlee Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/26/07
Posts: 735
Loc: Mayfield NY
Pete

IMRT is a form of radiation , I dont know the whole term for it . SCC = sqaumous cell carcinoma
BOT = base of tongue
Cisplastin is a form of chemo
Brachytherapy is a form of internal radiation
HBO = hyperbaric oxygen treatment
HMMMMM I can't think of anymore of top of my head ..but keep askin !!! Someone will be able to answer
_________________________
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery

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#22558 - 03/14/07 09:50 PM Re: Abbreviation questions
Pete D Offline
Patient Advocate (1000+ posts)

Registered: 11/19/05
Posts: 1128
Loc: Washington
Gary, here's a list with some referenced links.

Pete\
*********************************************
SCC - Squamous Cell Carcinoma
Dx - Diagnosis
Rx - Prescription
Tx - Therapy? Treatment?
BOT - Base of tongue
PEG - Percutaneous Endoscopic Gastrostomy aka feeding tube

http://www.oralcancerfoundation.org/dental/tube_feeding.htm

HPV - Human papillomavirus
rad - radiation
ENT - Ear, nose, throat Doctor aka Otolaryngologist
Glossectomy - Removal of tongue
Metastasis - Spreading of the cancer
XRT - Conventional external beam radiation therapy aka EBT
IMRT - Intensity modulated radiation therapy

http://www.oralcancerfoundation.org/facts/imrt_radiation.htm

PET - Positron emission tomography scan
CT/CAT - Co-axial tomography scan
EBT - External beam radiation therapy aka XRT
OCF - Oral Cancer Foundation
NCI -
CCC - Comprehensive cancer center or clinic; A tumor board at a cancer center will include doctors trained in different disciplines. Having your case presented and evaluated by this type of multidisciplinary team will give you the best options for treatment, considering all possibilities from their different areas of expertise.

http://www.oralcancerfoundation.org/resources/cancer_centers.htm

HBO - Hyper-baric oxygen Patient given oxygen under pressure prior to dental surgery.
Stage - Development of the cancer

http://www.oralcancerfoundation.org/facts/stages_cancer.htm

TNM - System for describing the cancer

http://www.oralcancerfoundation.org/facts/stages_cancer.htm

NCCN - National Comprehensive Cancer Network (an alliance of 20 leading comprehensive cancer centers).

http://www.oralcancerfoundation.org/treatment/pdf/head-and-neck.pdf

Margins - Refers to the margins of biopsied tissue; clean margins indicate that all the visible cancerous cells were removed.
Biopsy - Removal of sample or whole of suspect tissue

http://www.oralcancerfoundation.org/facts/detailed_biopsy.htm

Xerostomia - Dry mouth resulting from reduced or absent saliva flow
RO - Radiological oncologist
MO - Medical oncologist
DO - Dental oncologist
*********************************************
_________________________
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.

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#22559 - 03/15/07 01:09 PM Re: Abbreviation questions
DM32ASA Offline
"Above & Beyond" Member (500+ posts)

Registered: 04/09/06
Posts: 583
Loc: Washington
Thanks for Asking this Pete60.

I was looking for this information long time ago.

Hope all is going well with you.

Take care,
Diane
_________________________
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015

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#87823 - 01/11/09 05:08 AM Re: Abbreviation questions [Re: DM32ASA]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9069
Loc: PA

Posting on this thread so this moves up to the top. Its not easy for newer people to know all the abbreviations we use around here. Not sure if a newer list is available.
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#87828 - 01/11/09 01:34 PM Re: Abbreviation questions [Re: ChristineB]
Leslie B Offline
"Above & Beyond" Member (500+ posts)

Registered: 05/05/06
Posts: 716
Loc: Washington DC
NCI (which was left blank above) = National Cancer Institute, which is the cancer-research arm of the National Institutes of Health.





_________________________
Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.

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#87829 - 01/11/09 03:33 PM Re: Abbreviation questions [Re: Leslie B]
Mark Offline
Patient Advocate (1000+ posts)

Registered: 03/31/03
Posts: 1375
Loc: Minnesota, land of 10,000 taxe...
I'v been trying to find the list I started (and many contributed to) But have not had luck. Perhaps It got relocated. Does anyone know where it went?
_________________________
Mark, 14 Years +4 month survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.

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#87830 - 01/11/09 03:41 PM Re: Abbreviation questions [Re: Mark]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8311
Loc: Gulfport, Florida
_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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#87837 - 01/11/09 06:19 PM Re: Abbreviation questions [Re: davidcpa]
Good1 Offline
Platinum Member (300+ posts)

Registered: 09/17/08
Posts: 489
Loc: Illinois
Thanks David I had been searching for this too.

Patty
_________________________
48
SCC Floor of Mouth 7/06
9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx
35 rad 2006
Recurred 6/08, 1 Carboplatin, 1 Cisplatin
Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula
35 IMRT & Erbitux 11/08
4/15/09 recurrence
6/1/09 passed away, rest in peace

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#87854 - 01/11/09 11:52 PM Re: Abbreviation questions [Re: Good1]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4732
Loc: Laguna Niguel, CA
I just sent this thread to Chester so he would make it a permanent part of the FAQ's and the New Posters must read forum.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#89825 - 02/11/09 03:35 AM Re: Abbreviation questions [Re: Good1]
daughterkel Offline
Member

Registered: 02/11/09
Posts: 20
Loc: United States
Thank you, I have been wondering about some of those myself.

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#93641 - 04/13/09 07:58 PM Re: Abbreviation questions [Re: daughterkel]
Sweetpea Offline
Supporting Member (50+ posts)

Registered: 03/19/09
Posts: 54
Loc: Oregon
MEC Mucoepidermoid cancer
_________________________
Sweetpea
********
2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33

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#98802 - 07/05/09 08:16 PM Re: Abbreviation questions [Re: Good1]
greatgam4 Offline
Member

Registered: 07/05/09
Posts: 1
Loc: Minnesota, United States
I'm not sure if this is the place to tell you who I am and what my problem is. Last Thursday I was told by an ENT specialist that I have cancer. I don't know exactly what it is called. It is on my gum and soft tissue under my tongue. I am going for surgery on July 17th and I am scared stiff. I do not know what to expect.
I don't know all of the abreveations yet as I am a newbie.Thank you for listening to me.



Arlene

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#98806 - 07/05/09 09:42 PM Re: Abbreviation questions [Re: greatgam4]
ChristineB Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Registered: 06/23/07
Posts: 9069
Loc: PA
Welcoem to OCF Arlene. You will soon get the hang of this forum. There are so many helpful, encouraging members who will help guide you thru this.

When you want to start a post its easy. Just go to the topic you and and then click NEW POST. Also under the tab of My Stuff, click on profile and write a few things for a signature. These 2 things will help us to help you.

Have you had a second opinion? How was your cancer determined? Biopsy? Did you have a CT or PET scan yet?

Dont worry about the abbreviations, you will unfortunately understand them all very very soon. There is so much info here you can read for hours and get quite an education. Just remember, everyone is different. They respond to treatment and medicines at different rates. Also recovery is at ones own pace. You can get a general idea what to expect but its up to you and your body how things go from there. Dont let someone else's story scare you. Prepare for the worst but hope for the best.

Take soemone with yoru to appointments to write things down. Ask questions, surgeons operate thats their job. Will you be having radiation and chemo? Who will help you and be your caregiver? Start lining up friends relative and anyone who offers to help. Keep a list, even if they pick up your meds or do a load of laundry it will help.

Best of luck, I know you are scared and its ok, we will help smile
_________________________
Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07, no caregiver
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo extended hospital stay, ICU & burn unit
PICC line w/ IV antibiotics 8 mo
10/4/10, 2/14/11 reconst surg
OC 3 times in 3 years
very happy to be alive smile

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#98810 - 07/05/09 10:07 PM Re: Abbreviation questions [Re: ChristineB]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4732
Loc: Laguna Niguel, CA
greatgam4 If you read the first page of this thread that you are on there are all the abbreviations there to get you started. Print it out so that you can refer to it as all this begins to play our for you. Once you start your own thread of ideas and questions people will find you and continue to follow you, helping as you need it. Start in the introduce yourself forum.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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#120635 - 08/19/10 01:37 PM Re: Abbreviation questions [Re: ]
RPCV Offline
Gold Member (200+ posts)

Registered: 10/04/08
Posts: 251
Loc: VA
BOGUS POST copied from BRIAN'S POST above: #87854 - Sun Jan 11 2009 06:52 PM
_________________________
Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"

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#120636 - 08/19/10 02:27 PM Re: Abbreviation questions [Re: RPCV]
Charm2017 Offline
Patient Advocate (old timer, 2000 posts)

Registered: 03/03/08
Posts: 3082
Loc: Alexandria VA
Yep. Little Sir (or Ms) Echo was very busy last night copying posts by Brian, DavidCPA etc and reposting them without attribution. Each and every post is just a paste and copy from a prior one in the thread. Quite juvenile. Not even amusing as some are the original poster's concerns. The key is the profile: zzjo770 is a "seo" which stands for Search Engine Optimization in regular acronyms but more accurately here as Shallow Entertainment Oaf
Charm
_________________________
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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#120659 - 08/19/10 09:04 PM Re: Abbreviation questions [Re: Charm2017]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8311
Loc: Gulfport, Florida
I deleted him and all his posts earlier today.
_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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#120660 - 08/19/10 09:08 PM Re: Abbreviation questions [Re: davidcpa]
Susan2992 Offline
"Above & Beyond" Member (500+ posts)

Registered: 01/04/06
Posts: 701
Loc: Pennsylvania
David, I bet that felt good! The power you have! That is what is great about OCF -- very little "junk" mail on here, or as I called him a "vermin".
_________________________
Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2016

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#120661 - 08/19/10 09:12 PM Re: Abbreviation questions [Re: Susan2992]
davidcpa Offline

Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Registered: 09/28/06
Posts: 8311
Loc: Gulfport, Florida
None of us with THE POWER are here 24/7 so it helps like you all do when you PM me or even quicker, e mail me but that aside the first thing I check when I come on is new posters and I examine their Profile to make sure there are no links, then I read any posts they have made and sometimes I even have to put them on a "Watch Posts" alert.
_________________________
David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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#134259 - 05/18/11 05:15 AM Re: Abbreviation questions IMRT [Re: Pete60]
KenMc Offline
Member

Registered: 05/18/11
Posts: 3
Loc: VA
IMRT is intensity modulated radiation therapy. It's designed to limit the radiation delivered to healthy tissue, while giving the tumor the full dose. The radiation source is an x-ray beam that can come at the cancer from several different directions, and can have a different shape from each direction, using something called a collimator that is computer controlled to have the same shape as as the tumor. Think an (American) football-shaped tumor: end-on it looks circular, side-on oval. In IMRT the beam would be circular when coming at the tumor end-on, and oval when the beam direction is side on.
_________________________
KenMc

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#163727 - 04/07/13 09:25 PM Re: Abbreviation questions [Re: davidcpa]
debbiejeanne Offline
Member

Registered: 04/03/13
Posts: 19
Loc: Cincinnai, Ohio
nice list, thank you David. what does the letters and numbers mean in a dx? ex: tn3 (just made this up). laugh

debbiejeanne
_________________________
laryngeal cancer in 8/09. 35 rad tremnts no surgery. Recurrence in 2/12. Complete laryngectomy. 10/12 pet scan, clean ned.

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#166676 - 06/16/13 01:34 AM Re: Abbreviation questions [Re: Pete60]
tevs_sn Offline
Member

Registered: 06/14/13
Posts: 12
Loc: Georgia
Hi,
Sorry for my ignorance but I have read many of your stories and see "Ca" in your signature lines. What does this abbreviation mean?
Thanks
Svet

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#166678 - 06/16/13 01:45 AM Re: Abbreviation questions [Re: Pete60]
PaulB Offline
Patient Advocate (old timer, 2000 posts)

Registered: 07/06/12
Posts: 2814
Cancer.
_________________________
T1N2bM0 Left Tonsil









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#166686 - 06/16/13 05:55 AM Re: Abbreviation questions [Re: Pete60]
Brian Hill Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Registered: 03/18/02
Posts: 4732
Loc: Laguna Niguel, CA
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.

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