#89825 - 02/10/09 07:35 PM
Re: Abbreviation questions
[Re: Good1]
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Member
Registered: 02/10/09
Posts: 20
Loc: United States
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Thank you, I have been wondering about some of those myself.
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#93641 - 04/13/09 12:58 PM
Re: Abbreviation questions
[Re: daughterkel]
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Supporting Member (50+ posts)
Registered: 03/19/09
Posts: 54
Loc: Oregon
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MEC Mucoepidermoid cancer
_________________________
Sweetpea ******** 2/09 MEC Rt Submandibular Gland,Tumor Exc,age 68; 4/09 Rt Neck Resect, Excise Rt Lingual Nerve, 10 nodes; 1 month later- Lge Abscess Drained 5/09; 4 more cancers, final path report; 6/09 IMRTx33
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#98802 - 07/05/09 01:16 PM
Re: Abbreviation questions
[Re: Good1]
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Member
Registered: 07/05/09
Posts: 1
Loc: Minnesota, United States
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I'm not sure if this is the place to tell you who I am and what my problem is. Last Thursday I was told by an ENT specialist that I have cancer. I don't know exactly what it is called. It is on my gum and soft tissue under my tongue. I am going for surgery on July 17th and I am scared stiff. I do not know what to expect. I don't know all of the abreveations yet as I am a newbie.Thank you for listening to me.
Arlene
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#98806 - 07/05/09 02:42 PM
Re: Abbreviation questions
[Re: greatgam4]
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Administrator, OCF Ambassador at Large
Patient Advocate (old timer, 2000 posts)
Registered: 06/23/07
Posts: 6825
Loc: PA
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Welcoem to OCF Arlene. You will soon get the hang of this forum. There are so many helpful, encouraging members who will help guide you thru this. When you want to start a post its easy. Just go to the topic you and and then click NEW POST. Also under the tab of My Stuff, click on profile and write a few things for a signature. These 2 things will help us to help you. Have you had a second opinion? How was your cancer determined? Biopsy? Did you have a CT or PET scan yet? Dont worry about the abbreviations, you will unfortunately understand them all very very soon. There is so much info here you can read for hours and get quite an education. Just remember, everyone is different. They respond to treatment and medicines at different rates. Also recovery is at ones own pace. You can get a general idea what to expect but its up to you and your body how things go from there. Dont let someone else's story scare you. Prepare for the worst but hope for the best. Take soemone with yoru to appointments to write things down. Ask questions, surgeons operate thats their job. Will you be having radiation and chemo? Who will help you and be your caregiver? Start lining up friends relative and anyone who offers to help. Keep a list, even if they pick up your meds or do a load of laundry it will help. Best of luck, I know you are scared and its ok, we will help 
_________________________
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 rad end 9/27/07, no caregiver Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 155 HBO,trismus 3/09 teeth out 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma, 2 mo hospital PICC line IV antibiotics 8 mo 10/4/10, 2/14/11 reconst surg OC 3 times in 3 years very happy to be alive
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#98810 - 07/05/09 03:07 PM
Re: Abbreviation questions
[Re: ChristineB]
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OCF Founder
Patient Advocate (old timer, 2000 posts)
Registered: 03/18/02
Posts: 4480
Loc: Laguna Niguel, CA
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greatgam4 If you read the first page of this thread that you are on there are all the abbreviations there to get you started. Print it out so that you can refer to it as all this begins to play our for you. Once you start your own thread of ideas and questions people will find you and continue to follow you, helping as you need it. Start in the introduce yourself forum.
_________________________
Brian, stage 4 oral cancer survivor. OCF Founder and Director. "The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant."
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#120635 - 08/19/10 06:37 AM
Re: Abbreviation questions
[Re: ]
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Gold Member (200+ posts)
Registered: 10/04/08
Posts: 251
Loc: VA
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BOGUS POST copied from BRIAN'S POST above: #87854 - Sun Jan 11 2009 06:52 PM
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Catherine
2mm tumor excised 09/23/2008 (floor of mouth) SCC (superficially invasive, well-differentiated) Stage 1, T1N0M0 01/2009 and 01/2010 - PET/CT clear Four and 1/2 years - NED! "Detection can be easy, treatment is not!"
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#120636 - 08/19/10 07:27 AM
Re: Abbreviation questions
[Re: RPCV]
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Patient Advocate (old timer, 2000 posts)
Registered: 03/03/08
Posts: 3082
Loc: Alexandria VA
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Yep. Little Sir (or Ms) Echo was very busy last night copying posts by Brian, DavidCPA etc and reposting them without attribution. Each and every post is just a paste and copy from a prior one in the thread. Quite juvenile. Not even amusing as some are the original poster's concerns. The key is the profile: zzjo770 is a "seo" which stands for Search Engine Optimization in regular acronyms but more accurately here as Shallow Entertainment Oaf Charm
_________________________
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
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#120659 - 08/19/10 02:04 PM
Re: Abbreviation questions
[Re: Charm2017]
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Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Registered: 09/28/06
Posts: 7481
Loc: Gulfport, Florida
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I deleted him and all his posts earlier today.
_________________________
David
Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.
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#120660 - 08/19/10 02:08 PM
Re: Abbreviation questions
[Re: davidcpa]
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Platinum Member (300+ posts)
Registered: 01/04/06
Posts: 454
Loc: Pennsylvania
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David, I bet that felt good! The power you have! That is what is great about OCF -- very little "junk" mail on here, or as I called him a "vermin".
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Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013 Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia **OCF Regional Coordinator**
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#120661 - 08/19/10 02:12 PM
Re: Abbreviation questions
[Re: Susan2992]
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Administrator, Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Registered: 09/28/06
Posts: 7481
Loc: Gulfport, Florida
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None of us with THE POWER are here 24/7 so it helps like you all do when you PM me or even quicker, e mail me but that aside the first thing I check when I come on is new posters and I examine their Profile to make sure there are no links, then I read any posts they have made and sometimes I even have to put them on a "Watch Posts" alert.
_________________________
David
Age 58 at Dx, HPV 16+ SCC, T1N2bM0, Stage IV BOT and 2 nodes, non smoker, casual drinker and exercise nut, Cisplatin x 3 with concurrent IMRT x 35, (70 Gy), no surgery, no Peg, Tx at Moffitt over 8/28/06. June 2007, back to riding my bike 100 miles a week as if nothing happened.
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