#22517 03-14-2007 04:19 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Darrell and Family
My thoughs are with you today !
Sharlee
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#22518 03-14-2007 04:37 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | Darrell,
I am sorry to hear the sad news that you entered an hospice. Your struggle, strength and brevery is admirable and an inspiration to the rest of us.
I hope that you are comfortable and pain free.
Thank you for contributing so much to the foundation and I appreciate the help and advice you have given us.
My thoughts and prayers are with you and your family.
My thoughts and prayers are with you and your family.in
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#22519 03-15-2007 02:03 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Darrel, my thoughts and prayers are with you today....Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#22520 03-15-2007 02:12 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Darrell,
I also am a newcomer. And You are giving me STRENGTH!
I'm glad you got your weed, because I was gonna help on that one. I have not smoked in years but it's available.
In 1984 I lost my BEST FREIND to testicular cancer. My youngest son has his full name with my last name. I lived in N.J. at the time.
I would bring him an ounce every week to SLOAN-KETTERING in N.Y.C. It would take away his nausia, and give him an appetite. The hospital did not openly condone it, but they looked the other way. My freinds floor was for chomo, and you could smell weed everywhere. They were allowed to smoked it right in their rooms.
Anyway, I just wanted YOU to Know that This is NOT the End of Your Journey.
IT'S THE BEGINNING OF A BEAUTIFUL NEW ONE!
Sincerely, PeteyB
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#22521 03-15-2007 06:51 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Petey.....You are such a great guy.....What a lovely thing to say at the end of your note. (and what a generous thing to offer to do for Darrell, and I know that you would have somehow found a way to get it done.) You are going to do fine with your problems, because you have a beautiful heart. Hang in there, and stay with this forum. We NEED you!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22522 04-10-2007 10:52 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Darrell, I am deeply saddened to hear of your status but I am also happy to hear you are comfortable and getting the care you deserve. I am also glad to hear the herbal remedy has been directly dealt with as I was most anxious about flying to Mississippi to tend to your needs, my friend.  If there is anything you need or anything I can do for you I hope you know all you have to do is ask. I pray for you daily and have thought of you often lately. I took a little vacation to Chile and even though it was touted as a fishing trip, we spent most of our time riding buses and driving south to see the glaciers and the ocean. I will give you a link in the next couple of days to see all the pictures. God Bless you, Darrell, and may He comfort you and your family and fill your hearts with the warmth of His love. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#22523 05-07-2007 04:00 PM | Joined: May 2007 Posts: 2 Member | | Member
Joined: May 2007 Posts: 2 | Ah...if only I could get in my car and get to you with a bit of cannibis sativa...what a shame that our county will hand out methadone to help heroin addicts, (as it should) but will not ease you pain at this point...May the force be with you... | | |
#22524 05-08-2007 11:10 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2005 Posts: 72 | Darrell -
You have brought so many of us such comfort and peace during our dark and anxious days. I know that all that positive thoughts and light you sent our way is helping you and your family right now.
Peace to you my friend -
Carol R.
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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#22525 05-16-2007 09:46 AM | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2006 Posts: 101 | Darell,
You just made me laugh really hard when I read about your flowering Herb issue, and hoping not to fall in the shower. Thank you for that. I think everyone is getting so serious that they missed that. I have to tell you how much I appreciate you, you were one of the first people who addressed me and my fears on this site. I thank you for your support and kindness. Over the last year, I have purposely looked for you on the site, to see what words of comfort, humor and wisdom you have given. Be well and grind some Dorito's into your tube for me when you get the munchies!!!
All my Love
Jennie
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads.
Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol-
3rd reoccurrence 5/18/12- partial glossectomy
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