#22487 03-09-2007 03:05 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | I thought I posted this yesterday, but it isn't in there so that proves how dumb you you get on morphine & fentenyl patches.
I made the call to go into hospice last week after a wek of CHOKE and PUKE from chemotherapy. As most of you know, I am in third matastises from SCC. My wife, 2 daughters, and one son are holding up well.
No one knows the hour of our death. I will continue to be as active as I can until that hour arrives. Currently the hospice nurses have me real comfortable, real comfortable, better living through chemistry.
It is a crying shame that our US government will not legalize canibis. I can go down the road and legally purchase a gallon of booze. My Doctors can prescribe Morhine, and other high potency pain killers. My oncologist at the VA wrote a prescription in their system for canabis Indica but because of federal law it cannot be shipped accross state lines from a conforming state to a non-conforming state. Ironically, I live 40 miles from the University of Mississippi, the only place in North America, where it is grown, under close federal supervision, for complying states and licensed intities. So the pot you are smoking, if you live in one of the 21 states that have legalized it's use for medical purposes, it comes from Ole Miss.
Sorry about getting on a soap box. But POT would make my life and death more comfortable, not to mention nutrician.
Therfore I request, if you haven't done so yet, write your congressmen and senator's, legalize canibis NOW.
Your friend
Drrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#22488 03-09-2007 03:36 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Darrell,what a strong, brave man, you are. I hope your Hospice nurses are as good as the ones that helped me take care of John. Hopefully you will spend your remaining days pain free and talking about all of the good times and loving people in your life. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#22489 03-09-2007 05:00 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Darrell,
I am so sorry for your news. I will keep you and your family in my prayers.
If you move to California you can get medical marijuana pretty easily. It's locally grown and pretty expensive.
You can even grow your own if you have an ID card:
(d) Section 11357, relating to the possession of marijuana, and Section 11358, relating to the cultivation of marijuana, shall not apply to a patient, or to a patient's primary caregiver, who possesses or cultivates marijuana for the personal medical purposes of the patient upon the written or oral recommendation or approval of a physician.
11362.77. (a) A qualified patient or primary caregiver may possess no more than eight ounces of dried marijuana per qualified patient. In addition, a qualified patient or primary caregiver may also maintain no more than six mature or 12 immature marijuana plants per qualified patient.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#22490 03-09-2007 07:17 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hey Darell,
My prayers are with you and your family.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#22491 03-10-2007 12:43 AM | Joined: Nov 2006 Posts: 95 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 95 | Dear Darrell,
We have lived on the Gulf Coast of Mississippi since 10/04. We do love MS, but it is a rather conservative state in some ways. My husband, Michael, had a discussion about cannabis with his oncologist. His doctor definitely said it is the best thing to help with appetite and nausea. My husband has had some Marinol prescribed for his appetite and it does help, but it is not the same as the real thing. We did not know that Ole Miss was involved with its growth and distribution elsewhere. Michael and I also strongly believe that it should be available for everyone it would help medically. (FYI: Michael is a collector, buyer and seller of classic cameras.)
I am so sorry for your current situation. I hope that you can remain pain free.
Barbara S C/G to Michael age 58, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 (twice per day the last two weeks), first CT totally negative 01/23/07
Barbara S
C/G to Michael age 64, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 , last PET / CT scan 11/7/11 - still cancer free!!!
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#22492 03-10-2007 11:01 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Darrell,
We are here for you. If you want to talk about anything, I want to listen. BTW, I smoked after college and I don't think the gov't has any right in the pot question. I really thought by now it would be as legal as tobacco but I guess money talks. I am glad I wasn't introduced to pot in college or I'd probably still be there.LOL
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22493 03-10-2007 12:16 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Thinking of you here, Darrell. I'm glad that you are peaceful and comfortable. Love to you and your family from Helen
RHTonsil SCC Stage IV tx completed May 03
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#22494 03-10-2007 01:22 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Darrell, I'm glad the hospice is keeping you comfortable. You've been fighting this disease for quite a while I hope you can just enjoy your family and friends right now. You're in my thoughts.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#22495 03-10-2007 02:11 PM | Joined: Mar 2006 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 62 | Darrell-
I started reading your honest and to the heart posts just before your reoccurance. I've been wondering how you were doing. I am so sorry to hear the turn your jorney in Life has taken. I am very pleased to hear that you have allowed Hospice into your life and that your family is part of this.I'm sure that you can get Pot somehow some way. I'm thinking of you and wishing you time to love your family and friends.
Paula
caregiver to gil. dx 11/05.T2N2M0 Stage 4a bot rt tonsile,2 nodes, 35 IRMT 6weeks chemo
caregiver to Gil dx SCC 11/05 T2N2M0
finished tx 3/10/06 stage 4 rt tonsil,BOT,2 lymphnodes,35IRMT,6 chemo
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#22496 03-10-2007 02:16 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Darrell,
My prayers are with you, I will still hope and pray for a miracle for you. I'm glad they are keeping you comfortably numb as you wish. Rest easy.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22497 03-10-2007 03:42 PM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Darrell,
There are no words that can say what we are all feeling. So sorry to hear about this and My prayers are with you and family. Thinking of you.
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#22498 03-10-2007 08:21 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Hi Darrell,
No one knows when our last day on earth arrives and although I am saddened by your post, I do feel a bit better to learn that you are now well taken care of by the hospice nurses. The days ahead can be a real challenge to you and your family but I trust every moment you spend with them will be meaningful and precious. Take care,
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#22499 03-11-2007 01:49 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Darrell,
So sorry to hear , But I am glad you are with the people who love you the most and have hospice to help you . I wasnt aware of Marijuna being so benificial..( never e xperienced it on any level ) So what exactly can it do for you and I cant believe the gov't wont allow somthing that can help suffering ! ( I mean I know they do , just not right ). DO you know if NY allows this or where I could find out ? And I would be more then willing to write to the senators and congressmen on this issue or any issue that can make some one who is suffering with this disease quality of life better ! May peace be with you and your family during this time and forever !
Sharlee
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#22500 03-11-2007 02:54 PM | Joined: Sep 2006 Posts: 51 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2006 Posts: 51 | Darrell,
I know you are in the right hands,and I know your faith is strong... be at ease during this journey. My prayers are with you and your family.
Sarah
Sister is Stage 4 DIAG 9/06 Tongue/Tonsil /T4N1MO - BOT -right lateral/crossed midline-42 X IMRTS/ Carbo/Taxol for 7 weeks- finished treatment early 12/06-no trace to be found 1/24/07 Recurrence 12/09- rad neck and partial gloss 2/10
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#22501 03-11-2007 02:56 PM | Joined: Oct 2006 Posts: 12 Member | | Member
Joined: Oct 2006 Posts: 12 | Darrell,
My thoughts and prayers are with you. As far as the cannabis situation goes - where there's a will, there's a way............. Thinking of you.
Sue
Susan Holsberg
ssc r maxilla r partial maxillectomy 9/25 brachytherapy 12/7
28 imrt 12/27 erbitux 12/20 recurrance 5/07 total maxillectomy
keeping my fingers crossed
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#22502 03-11-2007 04:07 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Darrell.....My heart goes out to you, and I will continue to pray for you by name as you continue on your this journey called Life. Be assured that your courage and faith have been a beacon and an example to us all, and that you have accomplished great good by sharing your experiences with us.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22503 03-11-2007 05:01 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Darrell,
Your contributions to this forum have created a strong sense of bonding with you. You have inspired and been admired. You've shown how every new development, good or bad, has been an opportunity to gain a new perspective.
I too, had been wondering where you were and kept looking for a post from you.
I agree you have the right to a organic plant Mother Nature provides that gives you comfort. Political B.S. that it's ok in one state and not another. I'll write to the Congressman as you requested.
Darrell, you taught us that nearly all food is blendable when on a feeding tube for life. Is there anything you would like that I could make for you? Soup, seafood chowder, cookies, brownies?
If you want to talk, I want to listen too. Post, email, PM, whatever.
Ginny
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#22504 03-12-2007 02:05 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Darrell- My thoughts and prayers are with you and your family. It's a journey when we hear the words "You've got cancer". Your kind words of inspiration have helped many on us on our journey. May the rest of yours here be pain free and peaceful. I shall meet up with you someday as our faith takes us on a continuing journey with the many friends we have met here through the years. Love, Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#22505 03-12-2007 10:09 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Thanks for sharing and caring. I am doing well with hospice, they see to my every need or want. Today they brought me a vacuum machine and a shower chair. As you all know Mucocitis is terrible plus now there's brown GOO coming from my left lung, the vacuum machine is a Godsend.
The flowering Herb thing has been solved, so the Shower Chair will keep me off of the bathroom floor should I stagger or fall. LOL.
Thanks so very much for caring.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#22506 03-12-2007 01:54 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Darrell, just want you to know I am thinking about you today.Wish I were there to hold someone's hand. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#22507 03-12-2007 02:10 PM | Joined: Mar 2006 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 58 | Darrell, you have helped so many along the way. Thank you.
Peace and comfort sent your way. Angela
Caregiver to husband David, non smoker. Dx 1/06 SCC Base of Tongue Stage IV, neck nodes involved. Surgery/Chemo/Rad. Treatment finished 5/06. Waiting. Recurrence in lung, Aug07. 6 months Cisplatin/Erbitux. Spots shrinking after 3 Cisplatin tx.
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#22508 03-13-2007 12:13 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Darrell - Just wanted you to know that I am here, too, and keeping you in my thoughts and prayers. Your courage is an amazing thing to me! I'm glad that the hospice is taking good care of you and that your family seem to be holding up well. I do hope that you have peace and comfort in the difficult days ahead, but I am still visualizing and praying for a miracle and will continue to do so.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#22509 03-13-2007 12:31 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | prayers and hugs your way darrell. you are so brave and an inspiration to us all god bless you.
regards ..maz | | |
#22510 03-13-2007 09:34 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Darrell, I am thinking of you today and praying for you and your family....I hope you are doing okay, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#22511 03-13-2007 01:14 PM | Joined: Mar 2007 Posts: 13 Member | | Member
Joined: Mar 2007 Posts: 13 | Darrell,
I am new here and haven't been fortunate enough to get to know you, but your post touched my heart. I couldn't agree more that marijuana should be made readily available to cancer patients. I will write my congressman for sure.
You are in my thoughts and I am keeping you and your family in my prayers.
God Bless,
Lissy
Melissa
CG to husband (billy.calcutt) (44), BOT SCC Stage IV, node involvement
Dx 3/7/07. Cisplatin x 3/RAD x 30
TX over on 5/31/07!
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#22512 03-13-2007 03:51 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Darrell,
Please know that you are in my prayers and in my heart.
Your contributions to this forum have been a godsend to so many.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#22513 03-13-2007 04:12 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | HELLO. I'M NOT SURE IF THIS IS TO DARRELL OR JERRY. I AM A NEW PATIANT AND TRYING TO FIGURE THIS CHATROOM OR WHATEVER IT IS OUT. I LOGGED ON TODAY TO "INTRODUCE YOURSELF" AS PeteyB. someone named august replied...hello PeteyB and i do not know how to answer. please bear with me.i have tongue cancer and desperatly want to chat with someone. this is all new and very mind boggleing. some please help me understand this board so i can ask someone the hard questions i need answers to my name is Peter my e-mail is [email protected]
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#22514 03-13-2007 04:51 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Petey - I think you are in two places. When you log on, and click on "Introduce Yourself" then you should click on there it says "NewComer" for all the messages that people have sent you. I'm so glad you found us because there are lots of people that can help you!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#22515 03-14-2007 06:47 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Darrell,
I must say I am very proud of you for sticking to your beliefs even in your hour of great sorrow.
I too am a believer in Medical MJ. It really, really helped me thru the treatment.
When I was first diagnosed a fellow HNC survivor from the Bay Area told me it helped him with appetite, nausea, pain. He said I could get it with a prescription in the form of candies, muffins, etc.
Living in IL made that difficult, but I still had a few friends that were stonies as we all do. Lets face it a lot of people smoke pot. They were able to obtain some for me.
Well, I pulled a few recipes off the internet and made a Huge batch of brownies. I gotta say, my treatment changed drastically from that point forward. I eased back 80-90% on the pain meds, I still had diarrhea but the vomiting stopped, I mean stopped, my appetite came back, even with a severely damaged throat I was able to eat.
As I stated it helped me a lot. I am not telling others to do that, just how it helped me.
Also, since I don
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#22516 03-14-2007 04:01 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Just want you to know, I'm with you and your family in spirit today. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#22517 03-14-2007 04:19 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Darrell and Family
My thoughs are with you today !
Sharlee
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#22518 03-14-2007 04:37 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | Darrell,
I am sorry to hear the sad news that you entered an hospice. Your struggle, strength and brevery is admirable and an inspiration to the rest of us.
I hope that you are comfortable and pain free.
Thank you for contributing so much to the foundation and I appreciate the help and advice you have given us.
My thoughts and prayers are with you and your family.
My thoughts and prayers are with you and your family.in
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#22519 03-15-2007 02:03 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Darrel, my thoughts and prayers are with you today....Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#22520 03-15-2007 02:12 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hello Darrell,
I also am a newcomer. And You are giving me STRENGTH!
I'm glad you got your weed, because I was gonna help on that one. I have not smoked in years but it's available.
In 1984 I lost my BEST FREIND to testicular cancer. My youngest son has his full name with my last name. I lived in N.J. at the time.
I would bring him an ounce every week to SLOAN-KETTERING in N.Y.C. It would take away his nausia, and give him an appetite. The hospital did not openly condone it, but they looked the other way. My freinds floor was for chomo, and you could smell weed everywhere. They were allowed to smoked it right in their rooms.
Anyway, I just wanted YOU to Know that This is NOT the End of Your Journey.
IT'S THE BEGINNING OF A BEAUTIFUL NEW ONE!
Sincerely, PeteyB
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#22521 03-15-2007 06:51 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Petey.....You are such a great guy.....What a lovely thing to say at the end of your note. (and what a generous thing to offer to do for Darrell, and I know that you would have somehow found a way to get it done.) You are going to do fine with your problems, because you have a beautiful heart. Hang in there, and stay with this forum. We NEED you!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22522 04-10-2007 10:52 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Darrell, I am deeply saddened to hear of your status but I am also happy to hear you are comfortable and getting the care you deserve. I am also glad to hear the herbal remedy has been directly dealt with as I was most anxious about flying to Mississippi to tend to your needs, my friend.  If there is anything you need or anything I can do for you I hope you know all you have to do is ask. I pray for you daily and have thought of you often lately. I took a little vacation to Chile and even though it was touted as a fishing trip, we spent most of our time riding buses and driving south to see the glaciers and the ocean. I will give you a link in the next couple of days to see all the pictures. God Bless you, Darrell, and may He comfort you and your family and fill your hearts with the warmth of His love. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#22523 05-07-2007 04:00 PM | Joined: May 2007 Posts: 2 Member | | Member
Joined: May 2007 Posts: 2 | Ah...if only I could get in my car and get to you with a bit of cannibis sativa...what a shame that our county will hand out methadone to help heroin addicts, (as it should) but will not ease you pain at this point...May the force be with you... | | |
#22524 05-08-2007 11:10 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2005 Posts: 72 | Darrell -
You have brought so many of us such comfort and peace during our dark and anxious days. I know that all that positive thoughts and light you sent our way is helping you and your family right now.
Peace to you my friend -
Carol R.
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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#22525 05-16-2007 09:46 AM | Joined: Jan 2006 Posts: 101 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2006 Posts: 101 | Darell,
You just made me laugh really hard when I read about your flowering Herb issue, and hoping not to fall in the shower. Thank you for that. I think everyone is getting so serious that they missed that. I have to tell you how much I appreciate you, you were one of the first people who addressed me and my fears on this site. I thank you for your support and kindness. Over the last year, I have purposely looked for you on the site, to see what words of comfort, humor and wisdom you have given. Be well and grind some Dorito's into your tube for me when you get the munchies!!!
All my Love
Jennie
Caregiver to Erik -1st DX 12/22/2005 SCC of Tongue, T3N1M0, hemi-glossectomy,60 nodes removed, carboplatnin,Erbitux, 35Rads.
Reoccurrence T1N0M0 4/14/08-partial glossectomy-16 weeks Erbitux and Taxol-
3rd reoccurrence 5/18/12- partial glossectomy
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