#22487 03-09-2007 03:05 PM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | I thought I posted this yesterday, but it isn't in there so that proves how dumb you you get on morphine & fentenyl patches.
I made the call to go into hospice last week after a wek of CHOKE and PUKE from chemotherapy. As most of you know, I am in third matastises from SCC. My wife, 2 daughters, and one son are holding up well.
No one knows the hour of our death. I will continue to be as active as I can until that hour arrives. Currently the hospice nurses have me real comfortable, real comfortable, better living through chemistry.
It is a crying shame that our US government will not legalize canibis. I can go down the road and legally purchase a gallon of booze. My Doctors can prescribe Morhine, and other high potency pain killers. My oncologist at the VA wrote a prescription in their system for canabis Indica but because of federal law it cannot be shipped accross state lines from a conforming state to a non-conforming state. Ironically, I live 40 miles from the University of Mississippi, the only place in North America, where it is grown, under close federal supervision, for complying states and licensed intities. So the pot you are smoking, if you live in one of the 21 states that have legalized it's use for medical purposes, it comes from Ole Miss.
Sorry about getting on a soap box. But POT would make my life and death more comfortable, not to mention nutrician.
Therfore I request, if you haven't done so yet, write your congressmen and senator's, legalize canibis NOW.
Your friend
Drrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#22488 03-09-2007 03:36 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Darrell,what a strong, brave man, you are. I hope your Hospice nurses are as good as the ones that helped me take care of John. Hopefully you will spend your remaining days pain free and talking about all of the good times and loving people in your life. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#22489 03-09-2007 05:00 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Darrell,
I am so sorry for your news. I will keep you and your family in my prayers.
If you move to California you can get medical marijuana pretty easily. It's locally grown and pretty expensive.
You can even grow your own if you have an ID card:
(d) Section 11357, relating to the possession of marijuana, and Section 11358, relating to the cultivation of marijuana, shall not apply to a patient, or to a patient's primary caregiver, who possesses or cultivates marijuana for the personal medical purposes of the patient upon the written or oral recommendation or approval of a physician.
11362.77. (a) A qualified patient or primary caregiver may possess no more than eight ounces of dried marijuana per qualified patient. In addition, a qualified patient or primary caregiver may also maintain no more than six mature or 12 immature marijuana plants per qualified patient.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#22490 03-09-2007 07:17 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hey Darell,
My prayers are with you and your family.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#22491 03-10-2007 12:43 AM | Joined: Nov 2006 Posts: 95 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 95 | Dear Darrell,
We have lived on the Gulf Coast of Mississippi since 10/04. We do love MS, but it is a rather conservative state in some ways. My husband, Michael, had a discussion about cannabis with his oncologist. His doctor definitely said it is the best thing to help with appetite and nausea. My husband has had some Marinol prescribed for his appetite and it does help, but it is not the same as the real thing. We did not know that Ole Miss was involved with its growth and distribution elsewhere. Michael and I also strongly believe that it should be available for everyone it would help medically. (FYI: Michael is a collector, buyer and seller of classic cameras.)
I am so sorry for your current situation. I hope that you can remain pain free.
Barbara S C/G to Michael age 58, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 (twice per day the last two weeks), first CT totally negative 01/23/07
Barbara S
C/G to Michael age 64, stage 1 base of tongue SC cancer and a stage one for a couple lymph nodes, diagnosed 09/12/06, IMRT radiation 10/24/06 to 12/05/06 , last PET / CT scan 11/7/11 - still cancer free!!!
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#22492 03-10-2007 11:01 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Darrell,
We are here for you. If you want to talk about anything, I want to listen. BTW, I smoked after college and I don't think the gov't has any right in the pot question. I really thought by now it would be as legal as tobacco but I guess money talks. I am glad I wasn't introduced to pot in college or I'd probably still be there.LOL
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22493 03-10-2007 12:16 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Thinking of you here, Darrell. I'm glad that you are peaceful and comfortable. Love to you and your family from Helen
RHTonsil SCC Stage IV tx completed May 03
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#22494 03-10-2007 01:22 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Darrell, I'm glad the hospice is keeping you comfortable. You've been fighting this disease for quite a while I hope you can just enjoy your family and friends right now. You're in my thoughts.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#22495 03-10-2007 02:11 PM | Joined: Mar 2006 Posts: 62 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 62 | Darrell-
I started reading your honest and to the heart posts just before your reoccurance. I've been wondering how you were doing. I am so sorry to hear the turn your jorney in Life has taken. I am very pleased to hear that you have allowed Hospice into your life and that your family is part of this.I'm sure that you can get Pot somehow some way. I'm thinking of you and wishing you time to love your family and friends.
Paula
caregiver to gil. dx 11/05.T2N2M0 Stage 4a bot rt tonsile,2 nodes, 35 IRMT 6weeks chemo
caregiver to Gil dx SCC 11/05 T2N2M0
finished tx 3/10/06 stage 4 rt tonsil,BOT,2 lymphnodes,35IRMT,6 chemo
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#22496 03-10-2007 02:16 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Darrell,
My prayers are with you, I will still hope and pray for a miracle for you. I'm glad they are keeping you comfortably numb as you wish. Rest easy.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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