#22481 03-22-2007 12:42 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Kyle,
Sounds like a great deal of good news. Can't comment about the radiation, as I didn't have it. I'm sure you will get many answers to your question.
My experience was the same as yours has been up to this point. You may find some stiffness in your shoulder after awhile. That wouldn't be unusual. Also watch out for swelling in the neck area from the accumulation of lymph. This is a common side effect of the neck dissection and the condition is called "lymphedema". There will be suggestions for this if it occurs.
Good luck with your progress and keep us posted as to the recommendations for radiation, if it is deemed necessary.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#22482 03-22-2007 01:15 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Kyle,
Great news about the LYMPH NODES !!
Sharlee
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#22483 03-22-2007 04:13 PM | Joined: Sep 2006 Posts: 75 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2006 Posts: 75 | Kyle
Mine was may of 05. Stage 4 spread to nodes.
I just bought my boys 12 & 15 now a go Kart, we plan on doing some racing this summer. I look a life alot different now. I hope the best for you my freind.
Tongue Cancer, stage 4, spread to neck/ Radical neck, 3 chemos, 33 radiation. 5-18-2005
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#22484 03-23-2007 01:49 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Kyle,
Don't be surprised if they decide to do the rad that they also rad both sides of your neck.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22485 03-23-2007 03:33 AM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2007 Posts: 108 | Kyle,
Don't be afraid of the radiation. If you have to do it for a better chance to survive and never face it again, it is a good thing. Is it difficult? Yes. Is it survivable? Yes.
I had the same surgery as you but on my right side. Lost 1/3 of the tongue and did radiation on both side of the neck and from the front. I am 4 years out from the end of my radiation TX and still cancer free. I would do it all over again too if I had to!
The numbness faded with time for me and I have all sensation back.
Jim
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
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#22486 03-23-2007 03:48 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Hi Kyle,
Great news on the report today. I think the radiation issues are going to be similar in those locations. If you have to have it you will find a lot of information here but see what they say first. Hang in there and celebrate that positive report.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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