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#22423 03-29-2007 09:30 AM
Joined: Nov 2006
Posts: 166
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Nov 2006
Posts: 166
Before I was diagnosed I went to my primary care and she even did a strep swab off the left tonsil. When she did that I twitched because it hurt and she did not say a word. I feel she did not know what to look for and the ENT they sent me to was on it like a duck on a june bug. So to be safe I would recommend going to the ENT or someone who deals in oral cancers.


Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 smile
#22424 03-29-2007 12:30 PM
Joined: Apr 2005
Posts: 2,676
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Reading the above just lets all of us know what we are up against in finding a way to identify and stop this form of cancer. A daunting challange, but one well taken. Amy in the Ozarks.


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#22425 03-29-2007 02:43 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
If you are near a dental school / university healthcare system, I would add a specialty to Dr. Phan's recommendation and that is an oral medicine specialist. Memeber of the AAOM, a small sub group in dentistry, they are seldom in private practice and are mostly located at dental schools and treatment facilities. Their extra training makes them particularly adept at oral cancer diagnosis and management of issues once treatment begins. Oral Pathologists as well as those in medicine are the final stop though, since microscopic evaluation of biopsy sample is the gold standard for diagnosis.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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