#22374 02-26-2007 09:45 AM | Joined: Feb 2007 Posts: 7 Member | OP  Member
Joined: Feb 2007 Posts: 7 | Hello to all, I am the husband of a stage 4 SCC hard palete beautiful wife. She has learned of her cancer just a little over a month ago, and is having the hardest time coming to terms with it. I am suffering as well, but hers is a suffering I can not begin to grasp. I will be seeing her doctor for the first time Wednesday, and it has advanced to her Lymph nodes, and sinuses. We went from stage 3 to 4a in a month. I will be spending as much time as I can researching this disease, and any suggestions would be welcome.
Rob
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#22375 02-26-2007 10:21 AM | Joined: Aug 2006 Posts: 77 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2006 Posts: 77 | Hey Robert,
I'm sorry about your wife's condition. You're wise to stop by here. Read as much as you can and ask whatever questions you have on the forums. It's a long, hard road, but we'll help as much as we can.
Clint
Age 46; SCC BOT T3N1M0l dx 9/06
Cisplatin x3; radiation x42
Completed tx 10/31; Selective neck dissection 12/06
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#22376 02-26-2007 11:27 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Rob,
What type of doctor are you seeing Wed and for what reason(s)?
Who did the initial Dx?
Are you going to a Comprehensive Cancer Center?
Why was nothing done in the month between stage 3 and 4?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22377 02-26-2007 11:49 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Rob - I'm sure glad you found this site. I don't know what we would have done without the caring and compassionate people we've met here. My son and I are from the Knoxville area, too. He went to the UT Medical Center which has a Comprehensive Cancer Center and everyone there has been extraordinarily helpful. It's good you are going with your wife on Wednesday. It helps to have other people with you so that you can take notes and make sure you have all your questions answered. Has your wife already had a biopsy? It is a difficult time, but you and your wife can get through it. There are lots of people here that will help. Let us know how the appointment goes.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#22378 02-26-2007 01:04 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Rob --
Do a search (top of each page, in the center) for postings from August, who had a partial palatectomy last year. I'd think your wife's surgery could be similar to what she had, and Colleen (her name) would be a great source of information about what to expect.
All the best --
Leslie
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#22379 02-26-2007 05:14 PM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | Rob, welcome to the forum. This is a great place to get answers, find questions to ask the docs and sometimes just vent a bit. Let your wife know we are here too. It took me awhile to want to talk with others when I was dx'd with MS but I finally found a forum and it helped me a great deal because I knew that the people I was talking with really had first hand experience with what I was going through. So when I was dx.d with cancer I quickly found a forum with cancer survivors. This has helped me stay positive. Hopefully your wife will come visit as well. You are in my prayers. I'm almost halfway through my treatments and hanging in there. I don't have the same primary sight as your wife so my surgeries are different but treatment is probably close to the same. She can do this. It is very helpful to have someone at the dr.s appointment to help take notes and remember things. When I go I here everything they say and even take some notes, but I always forget to ask the questions that I really wanted to ask. My wife always has to remind me. You can get through this. My family and I will pray for you. Lee
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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#22380 02-28-2007 10:05 AM | Joined: Feb 2007 Posts: 7 Member | | OP Member
Joined: Feb 2007 Posts: 7 | Thank all of you for all the answers and support. This site, (all of you), is great.
Rob
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