#22209 02-08-2007 05:47 PM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | Hi everyone. This is my first visit here. Thanks to the lady who gave me the info on how to find this forum. I'm 33 and recently dx'd with Stage 4a, T2 N2b M0 squamous with primary in the left tonsil. The tumor was relatively small but it had moved to 2 nodes that were removed and showed poorly differentiated cells as well as 2-3 more possible nodes that are showing up in the ct and petscan. The tonsils have now been removed and I have started my radiation and chemo. I have a beautiful wife and wonderful 19 month old son. I am very glad to be here and my prayers are with everyone. Good Health and Good Help to you. Lee
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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#22210 02-08-2007 06:56 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Lee......Welcome to the forum family....Check in often, and you'll find support and encouragement..and information....that you can't get anywhere else. Invite your wife to read and post here also. She needs support too, and she will find it here. Many caregivers post here with questions of their own. You will be included in the prayers that most of us say for everyone on this forum. THAT's a lot of prayers!! I thank God for this forum!!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22211 02-08-2007 07:03 PM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 |
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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#22212 02-09-2007 02:43 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | lee33,
You will find this site to be extremely valuable in the years to come especially in the next 8 months or so. You will have many questions as you progess in Tx and it's best to add your Dx and Tx particulars under your signature so that you don't have to post them w/ each question.
Welcome to the BEST ORAL CANCER SITE in the world.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22213 02-09-2007 03:21 AM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2007 Posts: 108 | Welcome lee33,
I had something similar to what you are having but my cancer was in my tongue and it had spread to 1 node in my neck. I did not have chemo but did suffer through radiation.
If you have not read it already, the most important thing you can do is keep eating on a very regular schedule to:
1) Keep you mouth muscles working -- radiation will make it increasingly difficult but you are much better off if you keep swallowing food.
2) Keep hydrated -- radiation will make the skin feel much worse than the worst sunburn you have ever had.
I don't mean to scare you with this but you will experience it. It is short term, although when you are experiencing it, it seems like an eternity. I used my sense of humor to get through it.
If you have any questions as they come along, you are in the right place. Ask us.
Jim
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
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#22214 02-09-2007 05:20 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Welcome Lee, glad you found us. Please post often and let us know how you are doing and as Collen says many of us will be praying for you. Let us know if you need anything at all.
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22215 02-10-2007 06:10 PM | Joined: Jan 2007 Posts: 40 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2007 Posts: 40 | Hi Lee,
I am 36 and in treatment following the removal of a scc tongue tumour (about half of my tongue, free flap graft and now about to begin week 4 of a 6 week radiotherapy/cisplatin combo. So far, so good:) I had a bilateral neckdissectin with two nodes involved on the left. Side effects are just beginnning to kick in with some soreness to my mouth and a little tiredness, but not so bad really. Chemo has been fine, with no side effects so far - I wasn't going to write that in case it tempts fate, but I find it good to hear from people who felt better than they feared!Good Luck and lots of positive thoughts to you and your family. My husband and our 9 yer old daughter have been fantastic and I am being well looked after - I am sure you are too! | | |
#22216 02-11-2007 06:29 AM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | Thanks everyone and I will update on the treatment section, so far things are going ok except for minor constipation. Thank you for welcoming me.
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
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