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#22155 02-03-2007 10:21 AM
Joined: Feb 2007
Posts: 1
bpenner Offline OP
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Posts: 1
I got tongue and lymph node cancer over 1 year ago. I first had radiation and chemotherapy treatment that failed. We found out last April the cancer recurred. I then had an operation which removed the tumor from the base of my tongue and also removed the lymph nodes in my neck. This operation was in June 2006. Severe pain continues. Two MRI and one CT scan tests have been negative for cancer. I had a severe set back last week, when for no apparent reason my lower jaw broke behind my last molar. The doctors say this is either due to severe radiation or the cancer has recurred again. They will be doing a bone biopsy on Monday. If it is positive for cancer the doctors do not show much hope. If it is negative for cancer they are suggesting a major operation. One doctor suggested an outside chance for hyperbaric oxygen therapy to possibly heal the bone. Has anybody out there gone through a similar situation or has any information, as I really need to know more to make a treatment decision.

#22156 02-03-2007 04:24 PM
Joined: Sep 2006
Posts: 493
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Posts: 493
bpenner,
What a rough time you've had. I haven't had to go through anything like you are going through. I'm sure someone will come along here shortly and help. I just want to say that I pray that it's not a recurrence. There is always hope regardless of what the Drs say. Stay Stong.


Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
#22157 02-03-2007 06:57 PM
Joined: Apr 2006
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I know that you must be frantic. Try your best to stay in "neutral" until you know for sure what you have to deal with. I can only imagine how your mind and emotions are racing. Please let us know what you find out, and keep posting so that you can feel the support that comes your way.


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
#22158 02-04-2007 03:47 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
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Dear bpenner, please stay with us and let us know what happens on Monday. There is much people can share with you, once they know what is going on. Amy in the Ozarks.


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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#22159 02-04-2007 05:14 PM
Joined: Jan 2007
Posts: 108
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bpenner,

I had cancer in my tongue and was not properly advised to have my wisdom teeth removed before I went through radiation. Therefore, the doctors were afraid what is happening to you might happen to me. They put me in a hyperbarric chamber before and after the teeth extraction and all is well today 4+ years after my partial glosectomy and modified neck disection. If you have any specific questions, please let me know. I did not have a reocurrance, but might be able to help you.

Jim


T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.

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