#22104 02-02-2007 07:51 PM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | OP  Senior Member (75+ posts)
Joined: Feb 2007 Posts: 76 | Hello,
Just wanted to introduce myself to everyone on here. I will be the caregiver for my husband who as I said we have just found out he has cancer. I am thankful to have found this site. I have been looking for one to join for support and information. My husband had open heart surgery 3 yrs ago and I found a forum for support though that and so when we found this out I knew we would need another one. We go Monday Feb 5 for a pet scan and a bioespy. He has scc from what we have been told. We are praying that it has not spread but he is said to be in stage IV so I have been pretty scared as to what we will need to do. Just started reading on here and seem to have lots of info.
Barb
CG for Marvin.
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#22105 02-03-2007 03:52 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Welcome to the site. You will find tremendous support from all.
As soon as you know, let us know exactly what the Dx is and what TX is planned.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22106 02-03-2007 04:38 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Welcome. I'm sorry that you have the need to be here, but this forum is a blessing to all of us with OC. When you feel like it, please be more specific, and you'll get more specific support. I know that now everything is swimming in your head, and you don't even know what questions to ask.
Another poster wrote to ask me for specific questions I wished I had asked my doctor before my surgery. I thought that was a wonderful request! He and I have had similar surgeries. So....if you will be more specific, perhaps someone will guide you in the same way.
No matter what, we all support each other, because we have so many things in common.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22107 02-03-2007 04:46 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | I'm glad you found us. You're in for a battle, there's no way of sugar-coating that part. You aren't alone though. Everyone here will help with advice, experience, and empathy. A couple of suggestions while you're waiting for your first scans..take a deep breath.
Write down all of the questions that you have, as they occur to you. If they get too numerous, send them to your Doctor in advance by fax so he has time to absorb them and offer answers.
Take another deep breath. Repeat.
This is serious, and oral cancer is dangerous. fighting it successfully is "doable".
It is "win-able" and we're all here to help
Let us kow how the scans go
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#22108 02-03-2007 04:02 PM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Feb 2007 Posts: 76 | Thank you for your responses. I will let you know as soon as we do as to what everything is and the treatment we will be taking.
Barb
CG for Marvin.
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#22109 02-03-2007 04:18 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Welcome and I to am sorry that you are here. I hope and pray that your PET/CT and biopsy will be negative. We usuually say around here that it isn't cancer until the pathology confirms it, but you seem very sure that your husband has been confirmed to have SCC?
We will be here to answer any question you have when ever you want.
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22110 02-04-2007 02:49 PM | Joined: Mar 2006 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 90 | Welcome blc6571,
My father was diagnosed a little over a year ago. He lives in Indiana and had surgery, chemo and radiation treatments there as well. Where are you located in Indiana? You are wise to search out a support group and in my opinion, you have found the best for this type of cancer. Keep posting and let us know how you and your husband are doing. I don't know what I would have done without the individuals and the wealth of information on this site. I am more the happy to return the favor...........Kim
Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014
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#22111 02-04-2007 05:22 PM | Joined: Jan 2007 Posts: 108 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2007 Posts: 108 | Welcome blc6571,
As always it is a double edged sword meeting people on this site -- good to have support but bad to be fighting cancer. The important point is that this forum community can help you do just that -- fight and fight hard.
I am a survivor or tongue cancer and what the folks have suggested above is great advice. My girlfriend at the time (now wife) and I came up with four pages of questions and faxed them to my doctor before I was scheduled to see him. He spent over and hour going over the questions with us before we went on to the surgery and radiation.
Keep us informed and we will help the best we can.
Take care,
Jim
T3N2aM0 SCC right oral tongue. Partial Glosectomy, Modified Neck disection for 1 Lymph Node. Dec. 2002. 35 IMRT 2003.
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#22112 02-05-2007 02:52 PM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Feb 2007 Posts: 76 | We just got back from Indy today after the bioespy and pet scan. The doctor tryed to get the pet scan resolts before we left but was unable to. However he did say that from the biospy it is scc in stage 4. Said he will know more when he gets the offical pathology report and pet scan. I am to call his office tommorrow to see about moving up the start of treatment. At this point he hasnt mention doing any surgery. The primary is at the base of the tongue.
Kim, we live in Lafayette which is about 1hr from Indy. I hope to get marvin to start posting on here also I think it will be good for him to have people to talk with you have or are going though the same things. Thanks so much again.
Barb
CG for Marvin.
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#22113 02-07-2007 03:29 PM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Feb 2007 Posts: 76 | I want to pass on a little good news. We are thankful to find out that Marvins cancer has not spread other than were we knew. The doctor said the primary is at the base of the tongue and has gone to his lymph nodes on the right side of his neck. We go friday 2/9/07 to meet with the chemo doctor and then on 2/13/07 for a radiology apt. Not really sure what all to except. I will post his treatment info as soon as we get it.
Barb
CG for Marvin.
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