#22077 01-31-2007 07:38 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Dear All,
When I discovered this site, I didn't know how to particpate in such a forum, so I signed in as "August," since most people seemed to have some sort of clever moniker. Now that I feel that I have made friends here, I am not comfortable not using my own name, which is Colleen. I'll keep "August" as my sign-in name, since it is part of my history here, but it isn't my name. It's my birthday month.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22078 01-31-2007 08:56 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Welcome Coleen, you had me fooled i thought you were a guy.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22079 01-31-2007 10:26 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Good to meet you Colleen. 
RHTonsil SCC Stage IV tx completed May 03
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#22080 01-31-2007 11:38 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Stoj......that's funny.....a guy. I wonder what led you to think that. I'll have to think about that and find out why I sent you "guy vibes." I'll need to adjust my wave frequency! I guess I need to speak in a more girly manner. OK? LOL! FYI..tee hee.......what else do girls say? Maybe that's my problem......I just don't know how to be girly!! (I do tap dance, though, wearing fishnet hose and false eyelashes! My kids.....four grown boys.....get a kick out or that!)
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22081 01-31-2007 01:03 PM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Tim that's a great line "I thought you were a guy"
I can't believe I nominated you as the site's ladies man.
Always, Mark
P.S. Tim learn something here!!!
Colleen that is such a pretty name!
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#22082 01-31-2007 01:38 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | The name means "girl" in Irish....go figure. XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22083 01-31-2007 03:55 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | As I remove my foot from my mouth, let me try to explain...I just thought August was a guy's name.
Mark we all know that you are the ladies man around here. And by the way maybe I thought MD was for Mad Dog (20/20) or is it Mogen David and that you liked wine.
Collen,
You got me cracking up here, GIRL
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22084 01-31-2007 05:21 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hey, Colleen- I really like your name too- and my personal confession is that I wasn't sure whether you were male or female!! There were several times when I wanted to ask you a question that was gender related and I didn't.
This reminds me of the first several times I posted here. {OCF is my 1st and only experience in "chatting" on the net.} I didn't know not to use our real names, I disclosed my password once in a post AND got several e-mails from people telling me not to do that-boy was I uninformed about the net, and way to trusting. Still am, for that matter. I am probably too old and "too Southern" for this. I was raised to believe that your word is you bond and strangers are just friends waiting to happen . So, I am glad to meet you, Colleen. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#22085 01-31-2007 06:44 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Amy----we have to talk more about our beloved Ozarks. Having grown up in Memphis, the Ozarks in Arkansas were our stomping grounds, as we've discussed before. I didn't know what to do about names either, but as we've all become such close friends and share such personal information, it just seemed like it was time to "be myself." I, too, am too "Southern" to worry about all of the things we are told to worry about. Life is a little simpler down here in bayou country, though we are quickly outgrowing our small-town virtues.
PS--Crawfish season is just beginning. YUM!!Come visit!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22086 02-01-2007 02:17 AM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Tim, we all know that MD is my initials for my name although at times I do make pretend that it stands for Medical Doctor.Glad you have been receiving good news as of late. Colleen I never doubted for a minute your gender. Hi Amy, hope your energy and spirit get a boost soon, with all you have going on.
Always,
Mark D.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#22087 02-01-2007 03:10 PM | Joined: Nov 2005 Posts: 1,128 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Nov 2005 Posts: 1,128 | MD50, I'm glad you cleared that up -- I figured your moniker was from your favorite tipple -- Mad Dog 50/50 <big grin>.
Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
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#22088 02-01-2007 06:51 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Colleen - You had me fooled too! I had a friend in college named August. He was a huge, burly guy from Canada - basketball player - bad temper - wonderful laugh and twinkling eyes! So there's an alter ego for you.... TJ
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#22089 02-02-2007 06:33 AM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | I like the "huge, burly" part....also the basketball player alter ego....At 4'11" that's always been my goal....to be TALL! I do pride myself on being quick to laugh, and I am enjoying having inadvertantly provided you with a chuckle.
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#22090 02-02-2007 12:01 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | I like to laugh as well and especially at myself. But lately my friend Mark (MD50 or 20/20)has been cracking me up with such admissions that he likes to play Doctor, doesn't get kissed and will be wearing a T-back bikini in an upcoming photo shoot.
Mark, my teacher, you are just so smoove, I have so much to learn... :p
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22091 02-02-2007 12:15 PM | Joined: Oct 2006 Posts: 248 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 248 | Hey Tim, You better be careful --I very well could be a girl.
Always,
Mark D.
Mark D. Stage 3 Nasopharynx dx10/99 T2N3M0 40xrad 2x Cisplatin 5FU. acute leuk 1998.
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#22092 02-02-2007 01:29 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Mark & Tim,
I think you 2 have taken way too much medicine. Get off the stuff and come back down to the real world. JMHO
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#22093 02-02-2007 02:55 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Mark,
To quote a line I used earlier this week "you had me fooled"
David,
I can't speak for Mark, but I don't need medicine to feel this way....it just comes naturally.
I hope I didn't offfend, just having some fun.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#22094 02-02-2007 06:46 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Offend??? Heck, no!! Please keep us laughing! You guys are great!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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