#22009 01-28-2007 04:10 AM | Joined: Jul 2006 Posts: 446 "OCF Canuck" Platinum Member (300+ posts) |  "OCF Canuck" Platinum Member (300+ posts)
Joined: Jul 2006 Posts: 446 | Vicki,
Take a deep breath, and move forward. It is scary, absolutely. It is also treatable. Where will your husband be treated? There are a lot of comprehensive cancer centers around North America; make sure that he's being treated by people with experience in head and neck cancers.
Oral cancer is relatively rare; there are a lot of Doctors who simply don't see it often enough to be able to deal with it properly. Keep coming here...we've all been down the road before, and we'll help in any way we can
Wayne
SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
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#22010 01-28-2007 01:46 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Welcome, Vickie,Yep, we know it's scary!! You all will have lots of terminology and medical jargon thrown at you over the next few months. It a fact that one of the roles of a caregiver is to figure out how to keep up with all the "stuff" that's going on. Hopefully, you will use this site ad the good folks here to best advantage, because you will get great help [and comfort] here. Now's when the tough get going. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#22011 01-31-2007 01:52 AM | Joined: Jan 2007 Posts: 7 Member | | OP Member
Joined: Jan 2007 Posts: 7 | Thanks to all for the great replys.
My treatment starts on the 5th.
Ray C
Age 48, SCC stage 3, base of tonge & 1 node, non-smoker, No sugery, Cisplatin x 3, IMRT x33. TX completed 3-21-07
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#22012 01-31-2007 02:44 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hi Ray,
Welcome, Yes, things do go fast once they have have you scheduled. As you can see there is a lot of information here. It will help you get through this process.
Keep posting and know that someone will answer. I did not find this site until I was about 4 months out of treatment. So you are very lucky to have found it as you enter into treatment.
Not sure if anyone has said anything about a Peg Tube to you, but it is a must. It will help you keep up good nutrition and liquid intake. Some people here could eat all through treatment. I could not, so had to use the Peg Tube. All during your treatment make sure you swallow something. I am sure your Dr.s will explain that, but I wanted to mention it.
Try and take one day and week at a time. Keep reading it will help answer a lot of questions.
Take care
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#22013 01-31-2007 02:55 AM | Joined: Jan 2007 Posts: 7 Member | | OP Member
Joined: Jan 2007 Posts: 7 | From all my reading, everyone says the tube is really needed. I know some people do ok without it, but I just could not take the chance. I got mine on the 29th. It feels a bit strange, but I am sure I will be glade I went ahead and got one latter down the road.
Thanks,
Ray C
Age 48, SCC stage 3, base of tonge & 1 node, non-smoker, No sugery, Cisplatin x 3, IMRT x33. TX completed 3-21-07
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