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#21887 01-06-2007 04:10 AM
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I am a 51 year old male. I am a college professor and an accomplished marathoner. I have three sons. Other than a few injuries along the way, I have been very healthy. I had some lymph nodes swell in the left of my neck and, after examination, had surgery to remove them. The tissue was squamous carcinoma.
I completed my first day of evaluation at M. D. Anderson in Houston on 1/4/2007. I can't say enough about the facilities and staff here. My doctors have scheduled my second surgery for Monday, Jan. 8. They will remove some glandular tissue and take multiple biopsies in an effort to locate the primary source of the carcinoma. The results of that surgery will determine the extent of therapies and treatments.

I had dinner with Hardy and Jeri Meredith last night. Hardy had an amazingly similar bout with carcinoma in the throat area in 2005. He and Jeri shared a detailed picture of what they went through. It was shocking and probably more information than I really wanted to deal with. But, as I have always said, the 'unknown' is the worst thing to deal with. Now that I know the process more intimately, I can begin to accept and pursue the best course.


"life is not a rehearsal"
#21888 01-06-2007 04:35 AM
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At first I was Dx as occult primary and they did an exploratory biospy and found it at the base of tongue which is quite common. I also had 2 left nodes but Moffitt Cancer Institute said no surgery. Finding the primary results in a more targeted attack which lessens the damage from the IMRT. I was a non smoker, casual drinker and exercise nut my entire life. I had been riding my bike avg 100+ miles a week for years prior to Dx. I found my painless lumps in my neck shaving one day in May 2006 and the rest is UGLY history.

Please edit your signature to include your Dx and Tx, etc. so that each time you post the responder will be more informed.

I taught Accounting and Tax Law courses in college for 3 years before I joined the other side. Quite an experience. What is your field?

You will find this site extremely important as you make your way thru the Dark Tunnel as I called it. Feel free to ask or question anything. There is a tremendous amount of experience waiting to help you.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#21889 01-06-2007 05:52 AM
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Hi Fraz,

Welcome to OCF ! Hope all goes well for you on Monday. I am sure it will. I understand that MD Anderson is a great place. There are a lot of people here that have had there treatment there.

Like David said be sure to ask questions or use the search. There is a lot here to read and learn.
You are lucky that you have found this site before you start your treatment. I did not find site until I was 4 mo. out of treatment. This site has helped me so much along with the support of all here.

Take care,
Diane


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
#21890 01-06-2007 06:36 AM
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Fraz, MD Anderson in Houston is one of the leaders in cancer treatment and is a comprehensive cancer treatment center. They are working with a new proton bombardment method that causes even less damage to healthy tissue while in radiation therapy. You are in the best of hands, my friend.
Darrell


Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
#21891 01-06-2007 08:50 AM
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Hello. I am a 38 year old, married woman, who recently, went to the dentist, for my regular 6 month cleaning. My dentist found a "tongue lesion", on the right side of my tongue. I did not even know it was there. He sent me to an oral surgeon, who removed the whole growth, and had it biopsied. The result is "squamous dysplasia, moderate", "dysplastic process noted at inked margin of resection", and "acute inflammation". My surgeon said, basically, that means in between having cancer, and not having cancer. I have to go back in 3 months, or sooner, if I notice any new growths. This has completely shocked my husband and myself. I do not smoke, and have not smoked, I do not chew tobacco, nor have I every tried it, I also do not drink. I may have a glass of wine, ocassionally. In short, I am not in any "risk" groups. I am here to try to learn, as much as I can about this condition, so my husband and I can be proactive, and prepared, for any eventuality. Thank you for listening.


Susan
#21892 01-06-2007 01:34 PM
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Susan,

It's best to start your own post so that responders can devote their sole attention to your questions.

That said, I would not hesitate to get another opinion ASAP. Take your test results and slides to the nearest CCC (Comprehensive Cancer Center) and have them evaluate them and advise you. I would not wait 3 months on anyone's opinion if there is the possibility of oral cancer.

Good luck and keep us informed.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#21893 01-07-2007 11:43 AM
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Dear David..
My husband and I talked, and I am going to call my family doctor, tommorrow, to get an appointment, so he can see the results of my surgery and biopsy. Thank you for your answer. Could you please explain, how I can start a post? I am so new to this, I have no idea. Thank you again, for your help. Susan


Susan
#21894 01-07-2007 03:49 PM
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Susan,

You can start a post by going to the top of the page, clicking on New Topic, and posting your questions or concerns. That way it won't get mixed in with someone else's thread.

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
#21895 01-07-2007 04:22 PM
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Susan --

An oral surgeon's initial biopsy of my husband's leukoplakia, also found by his dentist, had a similar finding -- moderate dysplasia, but warning of a "skip effect" that could be hiding cancer cells. He did not immediately go to a CCC, since no cancer had been identified. When an ENT did a complete excisional biopsy a month later, the report showed SCC in situ and a bit superficially invasive.

Since then he has been followed by a doctor at Johns Hopkins CCC -- so far so good, knock on wood. When he made his first appointment at Hopkins six months ago he forwarded the original biopsy slides and all the surgical reports. With this disease it's important to be seen at a center where the doctors deal with this every day.

The main part of this site has a "Dental Lifesavers" page where dentists who identify this disease at its earliest, most curable stages are honored. Sounds like yours would qualify!

All the best,
Leslie


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
#21896 01-07-2007 05:18 PM
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Susan --

You might find this post of interest -- it's by someone with a similar pathology report to yours who was seen at a CCC.

-- Leslie


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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