#21781 12-20-2006 03:07 AM | Joined: Dec 2006 Posts: 2 Member | OP  Member
Joined: Dec 2006 Posts: 2 | OMG am I ever scared. Just Dec. 4th, I find out I have SCC that has camped out on my right tonsil, soft pallet, and base of the tongue. I see the medical oncologist tomorrow morning. It looks like both Chemo and Rad for me to start soon. They cant feel anything in my neck-nodes, and chest x-ray looks clear. PET is scheduled. Rad oncologist is very optimistic but says a "rough road" lies ahead for me... Life changes in a heart-beat! I'm not ready to "go" yet! God help us all.
Daniel B. Steinke
alive and fighting
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#21782 12-20-2006 03:41 AM | Joined: Aug 2006 Posts: 77 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2006 Posts: 77 | Hey Daniel,
I think the best way to deal with this si to get all of the information possible. You're certainly at the right place for it. Read around on the site & ask lots of questions. Being prepared has certainly made it much easier for me to get tyhrougfh this.
Clint
Age 46; SCC BOT T3N1M0l dx 9/06
Cisplatin x3; radiation x42
Completed tx 10/31; Selective neck dissection 12/06
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#21783 12-20-2006 04:00 AM | Joined: Jul 2005 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Hi Daniel,
If you need someone to speak with, I will gladly give you my phone number. Your attitude speaks a lot. It is a tough fight, but lots of us have done it. We can tell you what to expect and help you prepare.
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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#21784 12-20-2006 06:10 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Daniel,
One step at a time. Has anyone suggested surgery? Usually you either will have surgery or they will tell you the Chemorad will take care of it but either way it is usually dealt with first. Then you get to the Chemo Radiation decisions. Again usually all of this takes place after any scheduled Pet scan. So heed the advice before...read as much as you can and ask any questions. Try not to get overwhelmed. All of us learned as we went through this but one of the benefits of this site is we will share our experiences with you. So as soon as you know more, post it and read the many responses. You will find this site to be very valuable.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#21785 12-20-2006 06:36 AM | Joined: Sep 2006 Posts: 75 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2006 Posts: 75 | Daniel
The fisrt steps are the worst. You found this site, that will help. Gain information, you are not alone that for sure. GoodLuck
Tongue Cancer, stage 4, spread to neck/ Radical neck, 3 chemos, 33 radiation. 5-18-2005
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#21786 12-20-2006 10:12 AM | Joined: Dec 2003 Posts: 116 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Dec 2003 Posts: 116 | Were here to help and as the others said, read alot to get informed. Ask questions to make your surgury vs Rad/Chemo decision. I am glad I choose Radiation, it was a sure thing everything is gone compared with the unknown of nodes in the neck.
SCC R-Tonsil T2 NO MO Dec 2003. Completed IMRT Radiation only to tonsils(72Gy) and neck(55Gy)March 04. Detected at age 50.
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