#21541 11-09-2006 04:40 PM | Joined: Nov 2006 Posts: 9 Member | OP  Member
Joined: Nov 2006 Posts: 9 | Okay Leslie. Thank you so much for the tips. I will keep all of them in mind.
-Kendra
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#21542 11-09-2006 05:56 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Kendra,
Please let me know if you are seeing Dr. Karakla at EVMS. He is my doc and one of the very finest. No need to travel to Richmond area, good treatment is in your backyard. Email me if you want more details and I'd be happy to meet with your dad. We have a support group that meets on Mondays for when he's ready.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#21543 11-09-2006 06:05 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Leslie,
Yes, the Eastern Maine Medical Centers site has a link to OCF.........and their lobby has the OCF handouts. They are my doctors and I gave them and our support group all the info on OCF. If you read the article on this site about the walk we did here in Va and look at the pic of me with the two docs...........those are the men that saved my life!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#21544 11-09-2006 06:47 PM | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | Oh, Minnie, I should have remembered you were a local and sent her your way. Apologies.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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#21545 11-10-2006 09:07 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hey Leslie,
Never apologize for helping someone on here!! That was fantastic of you to take the time to research her area and help her get to the right docs. This doctors office and hospital are where she and her father need to be.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#21546 11-10-2006 02:14 PM | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Kendra, we brought a tape recorder and had no problems using it. We did ask each doctor first.
Early on, we had experienced problems previous to bringing a recorder. We would get home from the doctor and each of us would have a conflicting review of what was said.
One of the doctors even explained that it is common for that to happen. So much information is being given, you are processing one sentance and the doctor is 1 or 2 sentences ahead already. Each of us our processsing different portions of the discussion. So, he was all in favor of the recorder.
After we settled into the routine of treatments, and as the weeks went by, the need for the recorder was dimished. By then we had read volumes of information from this website, and became comfortable with the doctors and what they were saying.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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#21547 11-13-2006 01:37 PM | Joined: Nov 2006 Posts: 9 Member | | OP Member
Joined: Nov 2006 Posts: 9 | Minnie-- I am thrilled you posted. Brian had suggested you to me, so you could possibly speak to my father. He does need support from someone who has experienced oral cancer.. face to face support. I'll email you soon.
Mike.. Thanks for the suggestion. I plan on explaining why I need the tape recorder. I think with all the information we might receive, that a recorder would work nicely. We shall soon see.
Thanks again, all of you, for helping!
-Kendra
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