#21399 10-24-2006 11:28 AM | Joined: Mar 2005 Posts: 54 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2005 Posts: 54 | Hello Again Everybody!!!! I hope you are all doing well!!! I haven't been here in quite some time and have many regrets for this and some guilt! I have tried to put the cancer behind me and it would break my heart sometimes to visit the site. I have remembered all of you in my prayers regularly!
I feel somewhat selfish returning now, for I am once again in great need of advice/support. I have been doing well and have received all good reports until recently. I am apprx 20 months post-op and recently I noticed an oval shaped, approx 5mm ulcer in the back of my mouth. It is a smooth red, with a white (very round) border, and shows no signs of healing. It appears as a burn or blister with the top layer of skin peeled off. Forgive my poor knowledge of oral anatomy, but it is on the very thin tissue between the hinge of my jaw and tonsil on the left side (same side as primary). It has been two weeks (at least) and I finally made appt with ENT to get checked out on Thursday. I am scared to death, loosing sleep, and am making myself sick obsessing about it. I can't imagine that this is anything good. I am not sure what I am looking for here from anybody, but need to write to people who understand. If ENT does not on his own, I am going to strongly request a biopsy. It doesn't appear as any of the photos of cancer that I have ever seen (& have seen many). Has anybody had ulcers like this? Did cancer appear this way? I am not sure what to think, except that I am scared to death. Any input/advice would be GREATLY appreciated. Thank you all and GOD BLESS!!!
Rick
Rick T Stage II SCC(T2N0M0). Dx:Jan.05 Surgical removal w/Neck Dissection (nodes clear) Feb 1,2005.
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#21400 10-24-2006 12:08 PM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2006 Posts: 137 | Nobody here can make a diagnosis from a verbal description. You need to get back to your doc right away. Having been through this, you should know that.
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
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#21401 10-24-2006 12:14 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Dear Rick,It goes without saying that you are in a panic, but since this could be a number of things, keep taking deep breaths until you see the ENT. And please let us know what he reports so we'll known whether or not to worry about you. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#21402 10-24-2006 12:56 PM | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Oct 2006 Posts: 46 | Rick,
I'm fairly new to this board, but my husband was just diagnosed with a recurrence of SCC originating in the tonsil. He is now 4 years post-treatment and had done very well.
It is very, very scary but until you seek input from your docs, your questions will continue to haunt you.
Like Amy said, take a few deep breaths, get yourself into some good hands, and go from there.
I wish you only the best.....Loretta
C/G to husband SCC of right tonsil, Dx 5/02. Tx concurrent rad with Taxol and Cisplatin. Consolidation therapy Cisplatin and 5-FU. Recurrence 9/06, neck dissection 10/06. Tx with twice daily radiation; two in-patient infusions of Cisplatin.
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#21403 10-24-2006 01:29 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | You don't mention how long it has been there, but you know the rule longer than 14 days and it has to be biopsied. I don't know how far away you are from NYC, but I have a good firend and oral medicine specialist at NYU that I would like you to go and see if you can get there. Just email me and let me know. Bottom line... do not wait. If it is nothingserious, getting seen will give you peace of mind, if it is something serious, earlier is better than later to deal with it.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#21404 10-24-2006 02:55 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Hi Rick,
You are doing the right thing by getting it checked out on Thursday. Jack did have a similar spot on the side of his tongue and at the back of his gums, had the biopsy, and it was a benign papilloma. It's always scary and always needs to be checked out.
Right at the beginning our ENT told us to let him be the doctor and make the diagnosis and not to agonize about what needs to be checked out just make the appointment if we see anything. It's been good advice. Absolutely insist on the biopsy even if they think it's nothing because it's not a big deal for them to do that in the office.
Good luck on Thursday. Do the breathing thing that Amy is recommending. It helps to come back here and get support.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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#21405 10-26-2006 06:08 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | RickT, I was gald to see your name here again but wow--so sorry such scary circumstances bring you back. I guess today is your biopsy day, I'm thinking of you and crossing my fingers this will turn out not to be cancer.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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