#21345 10-17-2006 02:06 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | As most of you know, I have dealt with recurrent disease (Scc) for the past eight months. My last two scans were clean. I do not have to return for another scan until January.
I am blessed to have such a vast network, such as OCF, my church family and other area church families praying for remission. I am in remission now and trying daily to regain some of the strength I lost in Chemotherapy.
Talking about weight loss, I lost from a whopping 370 pounds to my current weight of 200 pounds 19" of girth.
Anyone need any extra skin?
Love all
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#21346 10-17-2006 02:28 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Darrell, I am so happy your last two scans were clean and hoping and praying for the same in January......God Bless, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#21347 10-17-2006 04:59 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Darrell, That is wonderful news that you've had two clean scans! Keep fighting the good fight.....
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#21348 10-17-2006 06:22 AM | Joined: Oct 2006 Posts: 46 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2006 Posts: 46 | Darrell,
I, too, am pleased to hear of your wonderful progress with your recurrence. It appears that you have yet again beaten back the monster.
Did you have more chemo? Were more radiation and surgery options this time?
Thanks,
Loretta
C/G to husband SCC of right tonsil, Dx 5/02. Tx concurrent rad with Taxol and Cisplatin. Consolidation therapy Cisplatin and 5-FU. Recurrence 9/06, neck dissection 10/06. Tx with twice daily radiation; two in-patient infusions of Cisplatin.
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#21349 10-17-2006 08:04 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | I continue to be amazed by the folks on this board and I'm so happy the lord has blessed you with a great support network.
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#21350 10-17-2006 11:29 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Darrell, it is fantastic to hear that you are doing well. I had been wondering how you were. You are one tough cookie. Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#21351 10-17-2006 12:22 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Darrell,
Your story certainly gives light and hope to those patients coping with cancer recurrence. The weight drop is a positive side-effect for you, I think. Well done and three cheers to our fighter.
Karen
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#21352 10-17-2006 05:54 PM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2005 Posts: 663 | Way to go Darrell!!
We are pulling for you as always and glad to hear that you are doing so well!!
With Love,
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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#21353 10-18-2006 04:34 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | I,too am glad to hear from you, Darrell. Been thinking about you and hoping you were well. Thanks for the offer of the extra skin, but I don't need any  Can't keep what I have under control. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#21354 10-24-2006 08:59 AM | Joined: Jan 2006 Posts: 19 Member | | Member
Joined: Jan 2006 Posts: 19 | That is awesome! My husband has his second scan post treatment on Nov 6th. I'm so happy for you.
Caregiver to husband Mike SCC Stage 3 no primary/Carbo/Taxol 2 Cisplatin/C5FUS/39rad/finished 3/15/06
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#21355 10-27-2006 03:59 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Congrats Darrell, it's been a long road for you and I'm glad to hear you're feeling better.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#21356 10-27-2006 04:44 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Darrell, So happy to hear you have things under control and clear scans. Now I wish you rest and get some of your strength back. It will take time. It feels funny with out that extra weight Huh? I lost 38 lbs. Had to go buy new clothes. I am sure you did too. It was fun I am sure. Take care Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
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#21357 11-16-2006 07:00 AM | Joined: Sep 2005 Posts: 325 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2005 Posts: 325 | Great news! Keep up the good work!
SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
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