#21213 09-28-2006 05:45 PM | Joined: Sep 2006 Posts: 1 Member | OP  Member
Joined: Sep 2006 Posts: 1 | I have experienced dental pain for appx two months but not sure about the Leukoplakia's life even though I am in the dentist chair every 4-6 months for hygiene. I had biopsy on 9/25 and will get results on 10/2. I have lived on the computer since the day my dentist said Leukoplakia. I suspect possible retromolar trigone? My fear is the pain I experience in my ear from time to time. It feels like cotton is stuffed in there. I don't know where to turn next but know I have to be patient until I get the results from the biopsy. If I have SSC should I be treated here in Dallas or go to MDAnderson in Houston? Any helpful advice will be appreciated. | | |
#21214 09-30-2006 12:31 PM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Hope for the best and keep us posted.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#21215 09-30-2006 03:59 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | CD{ is that how you want to be addressed?] Off the top of my head, I would say that if you are diagnosed with SCC and can get to MDAnderson in Houston, it would be a good move. Hope your biopsy is negatie.Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#21216 09-30-2006 05:22 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | The retromolar trigone is a location in the mouth, it is not a condition. You say nothing about the possible risk factors that you might have for the disease. If you have none of them, it could be just as likely that you have an ear infection, or have congested eustacian tubes for a host of benign possible reasons, and leukoplakia. Two separate issues. Take a deep breath, wait for the biopsy and don't assume the worst.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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