#21108 09-16-2006 04:20 PM | Joined: Sep 2006 Posts: 3 Member | OP  Member
Joined: Sep 2006 Posts: 3 | Hello,
My name is Carly and my mom was diagnosed with SCC tonsil and tongue cancer stage 3 about 1 1/2 weeks ago. I have joined this website in the hope to gain information that I can bring back to help our family understand more about this cancer. I feel like there is so much info I need and I hate the waiting game that seems to be happening now - as to what to expect next. Any info you all may have would be great. I am willing take as well as give any info I may be able to. Thanks and my best to you all - Carly | | | 
#21109 09-16-2006 05:17 PM | Joined: Sep 2006 Posts: 28 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2006 Posts: 28 | Hi CarlyGusta,
You will find more information here than you may get from the medical community, at least in the short term. We got a diagnosis a month ago and have been through a tumor board 1 1/2 weeks ago and we just now have a tenative surgery date. We have not planned radiation and/or chemo yet b/c we wait on the doctors. It is a waiting game for sure. But if you are using a top notch cancer center and post here often you will get the information you need. I am in this site several times a day and always find more useful information every time. I can't say enough about visiting here often. Good Luck, and keep us posted.
Barbara,
CG to Tom SCC IV dx'd 8/06, r. tonsil, T2,N2,M0. Modified radical, 30 nodes removed 9/29/06. 6 weeks radiation and 3 weeks amifostine. Tx ended 12/13/06. No chemo. TNB, Tom and Barb, too.
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#21110 09-17-2006 03:15 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Carly,
Sorry to hear about your mom. She is very lucky to have you as a daughter. If you haven't discovered the search areas on this site yet, check out the one at the top of this page, under "post reply". Also the main page search engine will give answers to most of the questions you may have.
Keep checking here on the forum for replys from members having similar diagnoses as your moms.
Good luck.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#21111 09-17-2006 02:55 PM | Joined: Sep 2006 Posts: 3 Member | | OP Member
Joined: Sep 2006 Posts: 3 | Thank you all for your replys this is very nice and very helpful. Thanks again | | |
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