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#20910 08-22-2006 12:41 PM
Joined: Aug 2006
Posts: 11
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Joined: Aug 2006
Posts: 11
mike your right it's good to hear from people who have fought this fight and survived in good health. and julie god bless you and your family please if you have any advice for me and my husband it would be appreciated. and carol congrats on your 4 yrs 3mos. thant is one thing that i see is after this fight is over i'll still be on here doing what you all are doing help the newbie with encouragement and information. it's amazing how we all could be across the world but you can feel the love and compassion in every word...... God Bless you all


marie
#20911 09-05-2006 12:27 AM
Joined: Aug 2006
Posts: 11
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Joined: Aug 2006
Posts: 11
hello everybody it's been a long time. well just to give a update i just had my PEG inserted (thursday) i'm still in alot of pain but i thinks it's because i haven't had a bowel movement i've tried stool softeners and a laxitive no good so any suggestions please? good news - they thought my cancer had spread but that's a negative. bad news - ontop of the cancer i have ulcers ( lot's of them) but them too are treatable but they are painful. my tube is inserted alittle high to me but it is now difficult to sleep. my parents and family have been trying to help out so much. my dad and step mother live in louisana so it's hard for them to be here physically but they still managed to buy a recliner for me... and my baby brother he works to help support my mother who has a tumor in her uterous it's begnin so they just took it out after 8 years so she doesn't work but he took me to get other supplies i needed and my mother has been trying to help me with the kids so it's great especially since i've been the outcast for so long from my brother and sisters... but when things needed to be done and bought my babba stepped up and made sure they were done... God Bless You ALL


marie
#20912 09-05-2006 03:58 PM
Joined: Apr 2005
Posts: 2,676
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Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Marie, Keep going girl! Here are a couple of things that helped John with the constipation problem. #1. Correctol tablets [disolved in water so he could put them down his peg] and
#2. Benefiber [we buy it at Walmart] It's a powder you mix with water, juice or whatever and helps keep you regular. When you get nutrition by peg, you don't get enough fiber. Also prune juice might help you. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

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