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#20829 08-13-2006 07:00 AM
Joined: May 2006
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"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2006
Posts: 720
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Sandhya --
I'd strongly recommend an ENT at a comprehensive cancer center, rather than a general ENT, since she has already gotten a cancer diagnosis.

We live in the DC area as well -- my husband's excisional biopsy of a leukoplakia was done by a general ENT in northern Virginia. But when the biopsy results showed cancer, he was seen by an ENT at Johns Hopkins CCC, about an hour away in Baltimore. In the latest US News rankings, Hopkins is #1 for ENT and #3 for cancer. If your mother is not coming to the US, there is a Hopkins web site about providing second opinions for patients who are overseas.

Georgetown, in DC, also has a CCC with head and neck cancer specialists.

Also, search the boards for messages by Praveen_Peddi (member #2830), whose brother is being treated in India. It sounds from the posts as if he is getting as aggressive and up-to-date treatment there as he would have gotten in the US. You could send Praveen an e-mail or private message to find out where he is being treated and perhaps seek another opinion there as well.

-- Leslie


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
#20830 09-07-2006 03:15 PM
Joined: Aug 2006
Posts: 6
TinaD Offline OP
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Joined: Aug 2006
Posts: 6
My family doctor pulled a favor and I got an earlier appointment with Dr. Harold Pelzer at Northwestern's CCC on Sept 7th. He did a through physical exam, a detailed review of my pathology report and answered every question I asked - Finally a doctor who isn't in a hurry!!

Here's the summary:
1. Moderate Dysplasia with or without a clear margin on the excisional biopsy is not to be ignored.
2. There are no clinical trials or prevention that he would recommend (previous Acutane and Celebrex studies are no longer considered valid). Aphthous Ulcers are viral and are not linked to this diagnosis.
3. He has sugessted the following suvellience plan with CCC appointments at the following intervals:
3 a) Every 2 months for the first 6 months.
3 b) Every 3 months for the rest of the 1st year.
3 c) Every 4 months for the 2nd year.
3 d) Every 6 months for the 3rd year.
(During this part of the appointment it almost seemed like Brian Hill was being quoted: "Keep an eye on things even after the removal from now until forever."!!:-))

The biopsy site has healed and I am feeling good! Thanks for all your info and support.


TinaD
#20831 09-08-2006 02:50 AM
Joined: May 2006
Posts: 720
Likes: 1
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: May 2006
Posts: 720
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Tina --

Sounds like you are on the right track, and good for you for pushing for an answer.

On the main part of the OCF site there is a Dental Lifesavers page -- the foundation has a program to honor dentists who do thorough oral cancer screenings and pick up on conditions at their earliest stages. As we all know, early detection is key. Sounds like your dentist would be a candidate.

I hope all continues well for you!

All the best --

Leslie


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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