#20243 04-15-2006 09:59 AM | Joined: Apr 2006 Posts: 8 Member | OP  Member
Joined: Apr 2006 Posts: 8 | Hi we are Al and Carole
We are from Canada
Al my mate (64) just found out he has cancer under the tounge. Heavy drinker/smoker. We see the specialist in the next city next Tues but the Cat scan is on Wed(19th)in our hospital.
Took a few days for everything to sink in and WoW.
Yes we know some things and yes we know other stuff but we don't kown anything really!
We live in a small city so the information is somewhat small town i guess. No other words to say i guess.
I'm scared because i know that TUESDAY will be the start of a very long vovage for us. He just does not want to think about it i guess... Only a snipp snipp and then life is back to normal... Oh ya I bet... Plenty of time for me to be the bad guy in this relationship i guess.
Just scared and i'm a fighter and don't want to go into battle without knowing the fight!!!!
Just Us
Carole & Al | | |
#20244 04-15-2006 01:27 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Carole (and Al),
and welcome to the forum. There is a ton of information on the home page and I suggest you start there because there is a lot to learn as you are finding out. Brian has done a great job organizing and finding the latest information.
I don't blame him for not wanting to know - many don't and it seems that we have more caregivers here then patients. It probably better if you are his advocate anyway since it can be very emotional for the patient.
Be sure to take good notes and don't let anything slip by you during the doctor appointments. We are here for you.
If he has to have radiation, consider a month of recovery for every week of treatment - typically 6 months. Recovery from surgery is much faster. For many of us it took a bit longer than 6 months to be fully functional again.
I sure hope that he has quit drinking and smoking at this point - it can have extremely severe consequences during and after treatment. Find a 12 step group for the drinking and get on the patch or the gum for the tobacco.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#20245 04-15-2006 03:09 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Carole [and Al] If Al reacts to this news and the treatment anything like my husband has,[which has been, don't tell me about it-Just fix it] then the burden is going to fall on you to stay on top of what is going on. It won't be easy for you because there is alot to learn and keep track of. Please find time to read the posts on the future "Getting through it" topic on this forum. The suggestions there will get you going in the right direction. Stay with us because you will get alot of help here and GOOD answers to questions. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#20246 04-16-2006 01:15 AM | Joined: Apr 2006 Posts: 8 Member | | OP Member
Joined: Apr 2006 Posts: 8 | Thanks for your advice and i'm sure that i will be looking here for more as time goes by.
He has not quit drinking but has slowed down in his smoking. He says that when the do surgery it will be hard to smoke so it will be easier then.
Happy Easter to everyone and again thanks | | |
#20247 04-16-2006 03:13 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Welcome to the forum. Take a deep breath, relax and try not to stress yourself. Take life one day at a time.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#20248 04-16-2006 03:35 PM | Joined: Mar 2006 Posts: 22 Member | | Member
Joined: Mar 2006 Posts: 22 | Hi Carole and welcome to the group. It is very difficult to get someone to quit smoking. It took my wife seeing my father go through this horrible ordeal to quit and even then it was tough. I quit chewing and my wife quit smoking with the aid of this website www.whyquit.com. Ask away, there are many answers here. Scott - Free and Healing for Five Months, One Day, 10 Hours and 34 Minutes, while extending my life expectancy 12 Days and 16 Hours, by avoiding the use of 3659 nicotine delivery devices that would have cost me $828.36.
Father diagnosed 3/06, Poorly Differentiated Carcinosarcoma BOT Primary. T3N2bM0
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#20249 04-17-2006 10:30 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2005 Posts: 72 | Hi Carole & Al -
I'm sorry you have a need to be here, but am so glad you found this site. I am sure you will find it a source of information and profound inspiration for you both during this journey.
Welcome.
Carol R.
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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#20250 04-18-2006 03:49 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Carol and Al
Just wanted to add my welcome... nice to meet you.
First advice from me, have him get a PEG. Its a tube which is inserted in his stomach and will be a lifesaver as far as nutrition is concerned.
good luck to you both.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#20251 04-20-2006 03:23 PM | Joined: Apr 2006 Posts: 1 Member | | Member
Joined: Apr 2006 Posts: 1 | I 2nd the PEG tube. I talk to a lot of people when they first begin treatment and the 2 most important items are nutrition and attitude. Of course, you need to have confidence in your medical team as well. So many people have a macho attitude and want to go thru it without the tube. Bad idea! Good luck to both of you! I always felt like this was tougher on my wife, the caregiver, than it was on me. I'm 51 and have my whole life ahead of me. Hang in there and get support if you even think you could use it, whether it's here or thru family and friends, or a support group.
SCC Base of Tongue Stage III, Mod. Rad. Neck Dissection, Radiation, Chemo. Diagnosed
6-30-03. SPOHNC Facilitator, Indpls, IN. Life is good!
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#20252 04-22-2006 04:11 AM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Carol - Welcome to the forum. You and Al must be feeling pretty overwhelmed right now. This is a wonderful web site to get good information and lots of support.
It is my observation that the guys (patients) who let their wives do most of the 'work' with the docs and information - don't do as well. It is my belief that the patient must be REALLY involved with learning, asking, reading and advocating. The tough, stoic, passive guys suffer more in my opinion. Getting involved, being proactive helps in many ways - not the least of which is literally less suffering. So don't 'rescue' him - get and keep him involved too. When the stunned wears off, he'll be ready to get in there. Get him on this site - let us talk to him. We can help. There are quite a number of old, tough guys here. Be strong. Tom
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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