#20221 04-11-2006 05:14 AM | Joined: Apr 2006 Posts: 36 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Apr 2006 Posts: 36 | Hello. I am new to this but will do my best. I had surgery on December 7th for cancer. I lost 3 teeth, the gum line, cheek liner and a section of jaw bone. A large section of my leg was placed in my mouth (this is called a flap). I have posted my ordeal on my website. Anyone wanting to check it out has to go through main page though as I have a warning as to the graphic nature of the pics. I am also doing lectures where ever I can about smokeless tobacco and my cancer. If you know anyone that uses smokeless tobacco, please show them my site. And good luck to all. God Bless, Curtis
The Outdoor Texan
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#20222 04-11-2006 04:22 PM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | Curtis,
Thank you so much for posting. I live just north of you in Oklahoma and have several friends I'm planning to tell about your site. I also had a similar surgery although I didn't lose as much inside my mouth as you. The cancer was on my tongue instead of my cheek, up my gum line and tonsilar pillar. I was lucky and didn't lose any teeth or my jawbone. I did have the jawsplit and have the same lovely scar up to my ear from the neck dissection.
My friends don't seem to connect my surgery with their chew habits..since I don't chew or smoke. It will be great to show them someone who also chews...an outdoorsman and hunter...someone they can really relate to! Thanks again!
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
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#20223 04-11-2006 04:57 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Good for you, Curtis, for spreading the word and for being so courageous! Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#20224 04-11-2006 11:36 PM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Hi Curtis,
You are to be commended for what you are doing with your public service through your great website and your speaking engagements.
I am currently working with a patient of mine to help him quit chewing. Although he does not have cancer yet, he has tissue changes that are pre-cancerous. I am expecting a package in the mail from an OCF member, Tonya, who's brother David, lost his battle with cancer from chewing tobacco, last year. She too, in conjunction with her sister-in-law, is speaking to local people and has successfully helped several of them stop chewing.
As soon as I ge to my office this morning I am going to email your link to my patient. This may just be the thing to "shock" him into stopping. There is no doubt in my mind that your website, story and pictures will have a great impact on him. I will let you know when he quits.
Congratulations on your successful surgery and I hope that you choose to stick around here and become a regular member. You have a lot to offer. Your website is terrific and although I am not a hunter, I plan on going back to it and read it all.
Thanks.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#20225 04-12-2006 02:06 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thank you Curtis, I will recommend your site to my son and daughter's college friends that use tobacco...(and lots of them do, unfortunately)Thank you! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#20226 04-12-2006 02:55 AM | Joined: Apr 2006 Posts: 36 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2006 Posts: 36 | Thanks for all the support. If anyone needs help, it is those that dip. Smokeless is a very addictive drug. And support means the world to those trying to quit. Contact me via email if you think I can be of any assistance to the ones you know. I will trade numbers with you and do all I can to help. Thanks again, and God bless.
The Outdoor Texan
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#20227 04-12-2006 01:42 PM | Joined: Mar 2006 Posts: 22 Member | | Member
Joined: Mar 2006 Posts: 22 | Hi Texan,
I just read your site. Thank you for spreading the word about dipping to young people. I dipped for over ten years, can and a half a day. Spread the word man!
Welcome to the site,
Scott
Free and Healing for Four Months, Twenty Seven Days, 8 Hours and 41 Minutes, while extending my life expectancy 12 Days and 8 Hours, by avoiding the use of 3561 nicotine delivery devices that would have cost me $806.06.
Father diagnosed 3/06, Poorly Differentiated Carcinosarcoma BOT Primary. T3N2bM0
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