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#20212 04-20-2006 10:13 AM
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kanada Offline OP
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Well I had my radical neck dissection and salivary gland relocation on Thurs and drains out and discharged from hospital on Monday.The surgeon removed +20 lymph glands from the side of the cancerous gland and a few from the other side since he was there anyway. Other than some swelling and discomfort - not able to swallow very good and major mucus that would not stop making me feel like choking!!

Now, for the last 3 days my face has been swelling like crazy - look like a character in a fat suit - like perhaps "Fat Bastard" - I was chubby faced before but this is bad. My skin in very stretched and sore. Every day the swelling has travelled higher up my face and this am it was under my eyes!! I have tried ice packs and then ice packs and heat.

My Dr. is in surgery today so when I went to emerg. this morning, they spoke to him and said come back tomorrow.

My sister is a nurse and a Dr. she works with said it almost sounds like the left over lymph nodes ain't picking up the slack for the guys who go removed. Don't I need those little PacMen garbage pickers to get rid of the stuff that is making me swell??

Has anyone else experienced this?

I gotta say, it is really adding to my discomfort and dispare about this whole thing!! If it was pain I could probably go to a second hand store and take my mind off it - but I would honestly scare little children by how swollen my face is.??

Thanks to those who answered my last post!!

#20213 04-20-2006 10:35 AM
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Okay Kanada,
It sounds like there is some complication that can be controlled or helped by your surgeon, I am sure you will get an answer, soon I hope, but it is a relief to see that your sense of humor is intact, your will to fight remains, two of the most crucial elements in fighting this evil bastard. Keep up the good fight my dear, the path to victory is often filled with obsticles, all of which you shall overcome.
always lenny

#20214 04-20-2006 04:09 PM
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Hi Kanada,

Sounds like lymphedema. There are therapists trained in getting the lymph flowing. The sooner you get started the sooner you will feel and look better.

Jerry


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
#20215 04-20-2006 05:14 PM
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You might find that sleeping with your head elevated (with a wedge of boards under your mattress) will help some.


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
#20216 04-21-2006 08:06 AM
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Hi Kanada, I am almost 4 years out and still have some swelling on the left side of my face (surgery side). I do see a therapist for lymphedema and it helps somewhat, I have a pillow shaped like a wedge that elevates my head (like Mark mentioned) that too helps some. Try looking up a therapist in your area that can get things moving for you, also my therapist has taught me a few exercises to do to help with it.....Good Luck, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#20217 04-21-2006 02:20 PM
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kanada Offline OP
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See - you guys are soooo smart - today I was finally able to see my surgeon inbetween him doing other surgeries and you folks are exactly right!! Of course he didn't give me the therapist referral part, which I intend to do. He said that it is normal to expect some swelling, although I did have more than most so put me on antibiotics to see if that would help as well. I had been sleeping on three pillows, but I think the extra elevation with a wedge is a good idea cause it is certainly better in the morning. Thanks again for your posts and your correct answers to the trivia game!!!


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