#20003 03-21-2006 03:06 PM | Joined: Sep 2005 Posts: 6 Member | OP  Member
Joined: Sep 2005 Posts: 6 | Hi Everyone, I'm a fairly new member, have not posted in awhile. I am 41 yrs old (non-smoker). I was diagnosed w/ SCC, Stage II, in left lateral tongue in Aug of 04, had two surgeries to remove tumor in Oct 04 (unable to get clear margins) - followed by 40 radiation treatments and 4 rounds of chemo. Had some complications throughout but treatment ultimately ended in Feb 05. I'm feeling pretty good now compared to this time last year, however, the progress I make seems to be in "baby steps" and is oftentimes frustrating. I am trying to get myself mentally ready for my appt w/ my oncologist tomorrow where she will give me the results of my latest PET scan. I'm hoping for good news. This site is a true godsend and I am grateful to all of you for sharing your stories and your wealth of information. Thank you.
SCC Stage II, left lateral tongue dx'd 8/04, 2 dissections on tongue 10/04 followed by 40 IMRT radiation, and 4 rounds of chemo. Treatment completed 2/05.
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#20004 03-21-2006 04:04 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Allyson, we all hope for good news for you  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#20005 03-21-2006 06:20 PM | Joined: Oct 2005 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2005 Posts: 126 | We are all looking forward to hear good news in your latest PET scan.
CG to wife;
Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005.
Dec 2006 tongue surgery, Scar tissue no cancer.
Feb 2010 neck node FNA - negative.
2010 ORN right jaw plus fracture
2015 ORN left jaw plus fracture
Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube
June 2016 Difficulty breathing - Permanent Trachea tube
Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020.
15-20 esophagus/larynx dilations
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#20006 03-22-2006 12:49 AM | Joined: Jan 2006 Posts: 107 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2006 Posts: 107 | good morning allyson,
I also am pretty new to this I have had 33IMRT radiation treatments, 3 rounds of chemo and a neck dissection (all finished by Jan 11 06) and had been impatiant with my recovery until my ENT and this site convinced mr that I have to think in terms of months and longer instead of weeks, so I bide my time. Hang in there my dear all will be well.
lenny | | |
#20007 03-22-2006 01:15 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Allyson, Your diagnosis and treatment sounds pretty similar to mine, I was just a few months behind you (finished treatment in early June of 05). Keeping my fingers crossed for you on the PET scan results.
I too have been making progress in baby steps although I am about 1000% better than I was at the end of treatment or even at the end of the summer. My main problem now is swallowing--I have severe dysphagia and am still on a PEG tube and I'm trying to walk the tightrope of staying motivated enough to do everyhting I can to improve and at the same time accepting that at this point I may not see huge improvements and may have to live my life without eating. It's a hard tightrope to walk for me right now, especially coupled with being back to work full time which is both wonderful and tiring (I find myself needing 9-10 hours sleep just to get through the day).
Anyway, welcome. There aren't so many other stage IIs here who ended up having radiation and chemo both and it's good to meet someone with close to my experience.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#20008 03-22-2006 05:07 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hello Allyson, and welcome.
We will be sending some good positive vibes your way.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#20009 03-22-2006 09:36 AM | Joined: Sep 2005 Posts: 6 Member | | OP Member
Joined: Sep 2005 Posts: 6 | Thanks for all your kind words. I did get GREAT NEWS today. PET scan was clear. YEAH!!! Thanks for all your support!
LIVE STRONG!
SCC Stage II, left lateral tongue dx'd 8/04, 2 dissections on tongue 10/04 followed by 40 IMRT radiation, and 4 rounds of chemo. Treatment completed 2/05.
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#20010 03-22-2006 01:14 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2004 Posts: 316 | Hi Allyson,
Congratulations to another clear scan survivor! I also had clear results a couple of weeks ago, and boy, does it lift the soul!
Cheers!
Tizz
End of Radiation - the "Ides of March" 2004 :-)
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#20011 03-22-2006 03:51 PM | Joined: Apr 2005 Posts: 80 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2005 Posts: 80 | :-) I read your first post and thought "I wish I knew what she found out today...I sure hope it was clear!", and was excited to read your 2nd post. What terrific news! A whole year and still clear. Congratulations Allyson!!
Jennifer
Jennifer
Stage II (T2N0M0) SCC diag 4/21/05; partial glossectomy & selective neck dissection (good margins and lymyph nodes negative), jaw split, 1/3 of tongue removed, free flap from left forearm - 5/23/05; 42 years old at diagnosis
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#20012 03-23-2006 03:45 PM | Joined: Mar 2006 Posts: 7 Member | | Member
Joined: Mar 2006 Posts: 7 | Hi Allyson - CONGRATULATIONS!!
Like Jennifer, I read your first post and then followed the trail down to your second and was so happy for you. That's great news! Continued good luck to you. Live Strong!
Hillary | | |
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