#19903 03-08-2006 11:59 AM | Joined: Mar 2006 Posts: 58 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2006 Posts: 58 | Hello all. I am the spouse of a patient with SCC base of tongue with partial glossectomy left base of tongue, bilateral neck dissection, left radial forearm free flap and he has a J tube in the intestines because of previous stomach surgery. His cancer surgery was Feb 7 at U of Wa and he starts radiation/chemo next week. We were hoping for IMRT, but it looks like standard for him now because of the amount of lymph nodes involved. Writing this all down makes my heart race. We are so very scared and still in disbelief. He is a non-smoker/drinker. Your support is so very appreciated.
Caregiver to husband David, non smoker. Dx 1/06 SCC Base of Tongue Stage IV, neck nodes involved. Surgery/Chemo/Rad. Treatment finished 5/06. Waiting. Recurrence in lung, Aug07. 6 months Cisplatin/Erbitux. Spots shrinking after 3 Cisplatin tx.
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#19904 03-08-2006 04:40 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Dear AngAk, As a caregiver, be prepared for your heart to race alot over the next months. It goes with the territory. Hope you have a good support group for the both of you because when the rad\chemo starts things are liable to get pretty hectic [and scary at times]. It helped me to have the direct phone numbers to my husband's Surgeon and nurse, so when we had a scary time I could call and get answers or help just about anytime.
Don't know what your household situation is [kids?] but I would suggest that you cook and freeze some nutritious soups, casseroles, etc for yourself before the next phase starts. If he gets down during the next phase, you will not feel like cooking and you need to keep yourself well and strong. My thoughts go out to you. This is a really tough time for you both. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#19905 03-09-2006 04:22 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Hang in there,,,,When you reach the end of your rope; tie a knot and hang on.....
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#19906 03-16-2006 09:57 AM | Joined: Mar 2006 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2006 Posts: 27 | Hello AngAk
Hope everything goes well with your husband. You are in my prayers.
Praveen | | |
#19907 03-16-2006 01:45 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello AngAk,
Welcome to the Oral Cancer Foundation. It is quite normal to feel scared of the unknown. Hopefully we can help educate you about oral cancer. Use the search engine at the top of the page and you will find tons of good info.
What stage was your husband dx at? What type of chemo drugs are they starting him on?
There are many of us here who have survived this diaease and I see no reason why he can't to!!!
Please keep us posted on his road to recovery.
All my best, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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