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Joined: Oct 2018
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Hinda Offline OP
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Had lesion surgically removed a year ago with clean margins and about 6 months ago area started with a lot of pain and continuing with occasional pain in my ear same side as lesion. An stiffness in my neck Go back to ENT every 3 months but doesn’t feel it necessary to biopsy. Going for cat scan of my neck next week. Worried and thinking I should insist on a biopsy again. ?? Any comments would be greatly appreciated. I am 66 non smoker and drink socially.

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Hi Hinda,

I would say that if you feel like something is wrong and are not happy with your doctor's advice, I would get a second opinion. Good luck!


Laura Age 40
Tongue lesion on left side grew and was hurting in mid-August
Dx as squamous cell carcinoma on 9.18.18
Left Neck Dissection and tongue surgery, lost a fourth of my tongue on 10.1.18, tumor had grown to a T3
Margins were clear except front section of tongue margin had three stray cancer cells that were not in the tumor
Additional surgery 10.18.18 to remove another cm near where the stray cells were found
33 radiation treatments from Nov 2018 through Jan 2019
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Hinda Offline OP
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Thank you! Just concerned with the pain I am having and him not wanting to do another biopsy after a year. Wondering if another biopsy could cause it to spread

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Absolutely get a second opinion or a new doctor. Don't mess around with this. Some ENTs are better than others.


MrsDranchak
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Hinda, was the lesion you had removed dysplasia? If so, s very common to have it come back after removal. Luckily most dysplasia does not change into cancer. If you feel your physician is not giving your other symptoms the attention they deserve, definitely find another ENT who specializes in treating oral cancer patients. Further testing may need to be needed to rule out a cancer diagnosis. Im hoping you do not have anything serious going on.

Best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Hinda Offline OP
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It was severe dysplasia ..with squamous cells ..will go for ct scan of neck this week and back to see dr. If he still won’t address the pain will go to another dr to rule things out! Thank you for your advice and concern!





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