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#192903 - 08/22/16 02:05 PM Mucoepidermoid carcinoma  
Joined: Aug 2016
Posts: 3
atul Offline
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atul  Offline
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Joined: Aug 2016
Posts: 3
recently my family member diagnosed having Mucoepidermoid carcinoma in the cavity of mouth low grade.. how fatal is it ? what care has to be taken

Last edited by ChristineB; 08/22/16 02:49 PM. Reason: spelling
#192930 - 08/27/16 08:12 PM Re: Mucoepidermoid carcinoma [Re: atul]  
Joined: Jun 2007
Posts: 10,155
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,155
PA
Welcome to OCF, Atul. Im sorry to read of your family members diagnosis.

Getting a cancer diagnosis isnt what it used to be. Many patients after treatment and recovers survive and go on to thrive after being diagnosed with cancer. Please dont automatically jump to conclusions that your family members cancer is terminal. That is of course unless the doctors have said its terminal. From what I understand Mucoepidermoid carcinoma cell (MCC) diagnosed as low grade has a very high rate of survival.

OCF, main site --- Mucoepidermoid carcinoma cell


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#192935 - 08/28/16 11:06 AM Re: Mucoepidermoid carcinoma [Re: atul]  
Joined: Aug 2016
Posts: 3
atul Offline
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atul  Offline
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Joined: Aug 2016
Posts: 3
thanks but confused what to do?
patient in this group having experience for getting treated on mucoepidermoid carcinoma cell can share the outcome if possible will helpful to understand the exact situation

#192942 - 08/28/16 11:34 PM Re: Mucoepidermoid carcinoma [Re: atul]  
Joined: Oct 2012
Posts: 1,012
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,012
Toronto, Canada
Dear Atul,

What kind of treatment has your medical team discussed with you? As you may have read in the posts here, response to treatment varies from person to person. Cancer, unfortunately, is one of those conditions where it is impossible to be exact about what the situation is going to be.

You may find it helpful to talk to your doctors and ask them what kind of treatment you are going to get and what kind of side effects you can expect to see. My personal experience was that I had to take things a day at a time without getting too far ahead of myself.

Hopefully someone with a similar diagnosis may come along and share his/her experience with you' but even then, you will need to take individual differences into consideration.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#197328 - 10/07/18 05:35 AM Re: How long do anyone live with relapse ? [Re: Ac56]  
Joined: Aug 2016
Posts: 3
atul Offline
Member
atul  Offline
Member

Joined: Aug 2016
Posts: 3
diagnosis : mucoepidermoide catcinoma of left buccal mucosa in 2015 and had only surgical operation and removed the tumor.....if reoccurrence what will be the best treatment... read lot of stuff about alternative theory of not taking radiation and chemo but one can heal by change in life style....does anyone opted not to go for surgical operation and radiation and heal oneself by taking proper diet and proper life style ? reply to the question will be helpful to take action

#197373 - 10/11/18 03:31 AM Re: How long do anyone live with relapse ? [Re: Ac56]  
Joined: Mar 2011
Posts: 1,017
tamvonk Offline
"OCF Kiwi Down Under"
tamvonk  Offline
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,017
New Zealand
Atul, please listen to your Doctors and do the rccommended treatments.
Changing diet and lifestyle will not cure a cancer.
The only proven treatments are surgery, radiation and or chemo. Or a combination of these.
I have come across some who chose alternative treatments. Sadly, they did not survive.

Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
#197376 - 10/11/18 11:59 AM Re: How long do anyone live with relapse ? [Re: Ac56]  
Joined: Jun 2007
Posts: 10,155
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,155
PA
Im sorry to read about your recent diagnosis! At this time the only ways to eliminate the cancer is thru surgery and/or radiation with or without chemo. Nothing else works,!!!! Not even chemo alone is enough to eliminate all the cancer. Alternative diet based methods will NOT work! Those other "treatments" are promoted by unscrupulous people who are trying to make money off of sick people which to me is disgusting. Trying unproven alternative methods is a waste of precious time allowing the cancer to grow and spread which lowers the chance of survival. Ive seen thousands of oral cancer patients join our online forum over the years. Unfortunately those who refused to go with the scientifically proven treatments have not been successfully treated.

OCF provides only correct, up to date medical info that is scientifically proven. OCF supports only peer reviewed, scientifically proven, tried and true treatment plans to such a degree that its even mentioned in our rules which every member agrees to abide by when joining. PER OCF RULES....Do not advocate for unproven cancer cures or treatments. Anyone who promotes unsubstantiated treatment options will quickly find they are in the wrong place. OCF is monitored 24/7 to ensure only scientifically proven medical info is shared. OCF would be doing its members and every person who finds and reads these posts a major disservice which could injure or kill someone by allowing unproven treatment options to be openly discussed here. Theres hundreds of sites out there which are not monitored, most of them are there to make money. Those sites and the people behind them do not care about their members health or if promoting unfounded treatments hurts anyone. At OCF, we are Health on the Net certified which means we provide only reliable correct medical info. This protects our members from getting caught up in false claims or miracle cures that do not exist.

Quackwatch.org is a website that blows the whistle on unfounded medical info. You may want to run some of those "cures" by that site to get the real info about what they're trying to pass off. Please do not bring unproven treatment ideas to our forum. I also urge you to avoid trying any of them as it most often doesnt turn out as patients are hoping. Wasting time after having the recurrence diagnosis is not a good idea. Recurrences can move very quickly so please choose conventional medial treatments which may not sound as easy as the fake cures but at least the patient has a chance to survive.

The best thing you can do is to find the best medical care you can as soon as possible to eliminate the cancer as quickly as possible. Read posts here and also on the main OCF site to help you to better understand oral cancer, treatments that are proven to work and learn so you can be a strong advocate for your wife. The link I gave you 2 years ago still contains valuable up to date info. As mentioned before a recurrence is NOT a death sentence!!! Im living proof patients can and do survive even when the odds are stacked against them. Ive known many survivors over the years who have been thru recurrences and gone on to live long, happy, healthy lives... those are the people who went with conventional, scientifically proven treatment methods.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#197386 - 10/12/18 12:40 PM Re: How long do anyone live with relapse ? [Re: atul]  
Joined: Feb 2015
Posts: 33
tlc356 Offline
Contributing Member (25+ posts)
tlc356  Offline
Contributing Member (25+ posts)

Joined: Feb 2015
Posts: 33
East Coast
Atul: I see you are from India. The best thing you can do is identify the leading cancer center near you, get your family member there and follow their advice. Here is what I have posted before as survivor advice.

Based on my experience having had two operations for oral cancer since 2003, I would like to suggest four thoughts for newcomers.

1) Since oral cancer hits only about 1% of the population, seek professional care from a medical center that specializes in cancer and has oral cancer specialists on staff.

2) Don’t be afraid to travel extra hours to such a center-your disease can be life threatening.

3) Follow-on care may be done at a location closer to your home that the cancer center works with.

4) Don’t wait to get help, and don’t second guess expert opinion but do get a second professional opinion if concerned.



.


SCC stage 1 Nov. '03, SCC stage 2 (clear mrg, no rad, no chemo) RND, Feb. '15

TLC356

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