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#197207 - 09/22/18 11:16 PM wish I had an idea of how much this costs  
Joined: Aug 2018
Posts: 124
ConnieT Offline
Senior Member (100+ posts)
ConnieT  Offline
Senior Member (100+ posts)

Joined: Aug 2018
Posts: 124
I'm starting to get the bills from July in now. I have no concept of the costs for treatment....I paid off all the smaller debts today (those under $325) and made payments on the big one. Still need to send the dentist $700 but he's getting payments too. I wonder if the financial people at the hospital KNOW how much our insurance will probably cover and normal expenses for treatment?

Right now, he's getting full income plus $300/month until disability runs out and then his co-workers said they will take that $300/month out for awhile. I like to have an idea to know how much I need to accept notary work to cover this.....I don't get paid for months so what I"m doing now, I will receive payment in November.

Has anyone been given an approximate cost for treatment or will I just have to watch the bills roll in one by one? I've never had something like this before so I have no idea.


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16
3 chemo treatments cisplantin
35 radiation treatments
husband was former smoker/chewed tobacco for 38 yrs.
#197210 - 09/23/18 01:19 AM Re: wish I had an idea of how much this costs [Re: ConnieT]  
Joined: Apr 2018
Posts: 44
DeniseG Offline
Contributing Member (25+ posts)
DeniseG  Offline
Contributing Member (25+ posts)

Joined: Apr 2018
Posts: 44
I did not get any heads up on what treatment would cost. However, I have a yearly cap on out of pocket, the surgery covered that so the radiation was covered at 100%. Look at your insurance or call to see what or how much it covers, and, yes go talk to the finance office at the hospital,hopefully you have a cap on out of pocket. My treatment topped $100,000. Usually you can work out a payment plan with the hospital.

Last edited by DeniseG; 09/23/18 01:21 AM.

Diagnosed 11/17 SCC right side of tongue
Surgery 2/18 Partial Glossectomy
Radiation 3/18 - 5/18
Clear PET scan 10/18
Non smoker, occasional alcohol use
#197213 - 09/23/18 02:08 AM Re: wish I had an idea of how much this costs [Re: ConnieT]  
Joined: Aug 2018
Posts: 124
ConnieT Offline
Senior Member (100+ posts)
ConnieT  Offline
Senior Member (100+ posts)

Joined: Aug 2018
Posts: 124
thanks Denise. I didn't know if talking to a finance office was an option but i got to thinking it might be. you think about those things on the weekend of course while paying all those medical bills!

Just one overnight stay for chemo was $25,000. so far, that's our biggest single bill $1600 due from us.


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16
3 chemo treatments cisplantin
35 radiation treatments
husband was former smoker/chewed tobacco for 38 yrs.
#197221 - 09/24/18 06:16 PM Re: wish I had an idea of how much this costs [Re: ConnieT]  
Joined: Aug 2018
Posts: 124
ConnieT Offline
Senior Member (100+ posts)
ConnieT  Offline
Senior Member (100+ posts)

Joined: Aug 2018
Posts: 124
happened upon the exact person I needed to talk to today. She told me that once we meet the deductible, there's a 20% charge for awhile and then treatment is covered 100%. Now to get my husband to give me password to see what policy level we have....so far, he's not giving it to me frown


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16
3 chemo treatments cisplantin
35 radiation treatments
husband was former smoker/chewed tobacco for 38 yrs.
#197321 - 10/06/18 08:28 PM Re: wish I had an idea of how much this costs [Re: ConnieT]  
Joined: Aug 2018
Posts: 124
ConnieT Offline
Senior Member (100+ posts)
ConnieT  Offline
Senior Member (100+ posts)

Joined: Aug 2018
Posts: 124
so it looks like about $5000 out of pocket for treatment for 2018. $900 for dentist and $3500 out of pocket for radiation and chemo. I'm paying all the smaller charges and doing a payment plan with the hospital for all the hospitals stays. I've not had to depend of insurance except for my c-sections so I can appreciate having it now! I am going to total the costs sent to insurance just out of curiousity once I have them all in front of me.


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16
3 chemo treatments cisplantin
35 radiation treatments
husband was former smoker/chewed tobacco for 38 yrs.
#197325 - 10/07/18 03:12 AM Re: wish I had an idea of how much this costs [Re: ConnieT]  
Joined: Jun 2007
Posts: 10,155
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,155
PA
Thats a great idea Connie! Please let us know what the total before insurance adds up to. If possible try to include every single charge... even the dentist, fluoride trays, hospitalization, extra hydration, prescriptions, etc.

Years ago when I was going thru everything I had been keeping track. In 2009, it was an extremely difficult year for me! I do remember seeing a bill for over $200,000. I also received other bills showing charges totaling over $100,000. I used to joke I was the $1,000,000 woman, that was before my third OC diagnosis in 2009.





Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
#197326 - 10/07/18 03:39 AM Re: wish I had an idea of how much this costs [Re: ConnieT]  
Joined: Aug 2018
Posts: 124
ConnieT Offline
Senior Member (100+ posts)
ConnieT  Offline
Senior Member (100+ posts)

Joined: Aug 2018
Posts: 124
well, i know radiation alone was $121,000. First hospital visit $25,000 for an overnight stay. 2 more of those plus extra days. i kind of joked to the radiation insurance person that I estimated months ago it would total between $500,000 and 1 million. She didn't laugh....she had been through this with her husband over 7 yrs ago so I took my guess to probably be about on target. We will see. I'm a numbers person so I will add it all up and list for others to see.


Spouse of 56 yr old with BOT cancer
Stage 4a HPV16
3 chemo treatments cisplantin
35 radiation treatments
husband was former smoker/chewed tobacco for 38 yrs.

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