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#197086 - 09/06/18 06:04 AM SIX MONTHS IS TOO LONG  
Joined: Apr 2015
Posts: 91
Neicy Offline
Supporting Member (50+ posts)
Neicy  Offline
Supporting Member (50+ posts)

Joined: Apr 2015
Posts: 91
Louisville, KY
I was hoping to get a couple of opinions related to follow up visits. I have been doing great after my surgery as noted below for 3 1/2 years. I recently moved to the West from KY. My doctor in KY let me come for check ups every month at first, then every two months, then every 3 months. I went today to the new Cancer Center I will be going to. I was super stressed out because I have been seeing the same doctor this whole time. This new doctor said I don't need to come in 3 months and gave me an appointment six months from now. I do not like this at all. Why wait six months? If it is going to return, better to find out sooner than later, right? He said the recurrence rate drops significantly after 2 years, so just come in 6 months. If I see something or feel something, then come sooner! By the time I FEEL something, it could be too late. Unless the recurrence rate drops to 0% I prefer to go more often. I totally don't get this. If it's so unlikely to return, why do they have you come back at all??? I don't see the harm in going every 3 months just to play it safe.

I thought maybe to just go to another doctor for a check up after three months. Then go back to this guy.

So, am I crazy or something? I don't think I can wait 6 months. Please can I get a couple of opinions? Am I being unreasonable? I don't think so!

Denise


Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
#197087 - 09/06/18 12:34 PM Re: SIX MONTHS IS TOO LONG [Re: Neicy]  
Joined: Oct 2012
Posts: 997
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
"Above & Beyond" Member (500+ posts)

Joined: Oct 2012
Posts: 997
Toronto, Canada
I’m not sure how your insurance works, but going to your primary care physician before the six months are up may be a way of reassuring you that nothing untoward is happening. My husband used to go to his PCP every month or so even while he was in treatment. His PCP helped him with all kind of stuff (like sleep apnea, granulation at the feeding tube insertion site, skin changes after chem, etc.) that the oncologists simply did not tackle. The PCP is also the one who can advise you to go back to your oncologist if it’s necessary.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#197088 - 09/06/18 05:32 PM Re: SIX MONTHS IS TOO LONG [Re: Neicy]  
Joined: Apr 2015
Posts: 91
Neicy Offline
Supporting Member (50+ posts)
Neicy  Offline
Supporting Member (50+ posts)

Joined: Apr 2015
Posts: 91
Louisville, KY
Wow, thanks Gloria! I never thought to just check with a PCP. I have to find one being new to this area. That is great advice and I will follow it. I am new to New Mexico and getting used to the new insurance and having to find doctors. I will follow your advice. The oncologist is really great but I am WAY TOO paranoid to wait six months.
Thank you so much for your response.
Denise


Biopsy tongue 3/24/15
Diagnosis SCC tongue/floor of mouth
Partial glossectomy, resection and right neck dissection done
4/22/15
T2aN0M0
05/01/2015-no further treatment indicated at this time,
monthly check ups for two years
#197090 - 09/07/18 01:33 AM Re: SIX MONTHS IS TOO LONG [Re: Neicy]  
Joined: Oct 2012
Posts: 997
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
"Above & Beyond" Member (500+ posts)

Joined: Oct 2012
Posts: 997
Toronto, Canada
Glad to have been able to support you.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.

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