| | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | THANK YOU for purchasing the Vitamix thru OCF!!!! The more people who order the Vitamix blender one thru us, the more needy people who have long term swallowing issues OCF can provide a free Vitamix blender to.
Im not sure what you mean by "the set"? Are you talking about the bags used for the formula? Or do you mean the editing the settings on the pump? I can help you with info about either one.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2018 Posts: 15 Member | | Member
Joined: Feb 2018 Posts: 15 | Yes, I'm thinking of the bags used for formula. But I bet there are washable alternatives for blended diets?
thank you , Jon
SCC, HPV-related P16 Stage III T1N1M0
(prim. site rt base of tongue, 1.5 cm, 1 lymph node, nearly 3 cm)
Rad neck dissection 5/19/17 no probs
TORS 5/26/17 remove rt tonsil and divot at rt base of tongue
Arterial bleed at surgical site 5/31/17, 5 days intubated and sedated
Asp. pneumonia, hosp acquired pneumonia, DVTs
Tot 13 days in ICU
31 days targeted rad, until 9/21/17
No evidence of disease since
Still G-tube dep
Very grateful to be alive
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Im sorry but I do not know what is available to work best with the blended diet foods. Be very cautious about using blended foods! There are major differences between real food and the formulas. The liquid formulas doctors prescribe to use with feeding tubes are specially designed to work with the tubes. The formulas are a balanced diet while its nearly impossible to figure out exactly what the blended diet nutritional composition is and if it addresses all needed nutrients. Real foods could cause the feeding tube to clog or break down much quicker then if using the liquid prescription formulas. Plus you still will need all the other feeding tube things like the syringes to flusht eh tube after each use. These are only a couple basic problems that can arise with using real foods instead of the formulas. One place that may help you with bags if you are having trouble getting them would be The Oley Foundations patient exchange program. Im sure there are plenty of people who can match the type of bag you use with their leftovers. If you try buying the bags without any other tube supplies the medical supply companies mark the price way up. I was quoted the outrageous price of $30 per bag and that was at least 5 years ago. The Oley Foundation will connect needy patients with supplies where all the patient needs to pay is the s&h cost which used to be a flat fee of $16 per case. The patient sends the money order to the person who has the supplies and then they ship the product out. Oley Patient Exchange Program
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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