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#196795 07-20-2018 08:29 PM
Joined: Mar 2018
Posts: 34
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Mar 2018
Posts: 34
Hi all!

So tonight I decided I needed to get back on my fluoride trays since I stopped using them when my mouth pain got too bad. I am almost 2 months out from rads and chemo.

So I put them in but could only leave them in for about 6 minutes as my mouth started tingling and bothering me. Have any of you had this happen? Have others stopped the trays for a while post rads? Any suggestions?

Thanks!
Linda


Stage 3 SCC of tongue/floor of mouth. Originally Stage T1N0M0 but one pesky lymph node discovered in neck after resection.
Now T1N1M0
Surgery 2/16/18 at UAB.
30 Proton Therapy Treatments
Cisplatin Chemotherapy
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
I cant remember going thru anything like that, Linda. After rads most patients have a very sensitive mouth for months. The fluoride trays are very important to use. Rads does quite a number on your teeth! I ended up losing my teeth after going thru rads. My teeth shifted and became so loose I was afraid they would fall right out when I tried to eat something.

You may find relief if you try to first numb your mouth with magic mouthwash and then try to use the fluoride trays again. If you dont have magic mouthwash (MM), ask your doc for a prescription for it. There are several versions available. I had a mix of maalox, benedryl and lidocain and it worked great for me. Make sure not to swallow it!!! Take about 2 teaspoons full of MM and swish it around in yoru mouth for at least 30 seconds and spit it out. Your mouth should be numbed for a good 15 minutes or more.

Hope this help!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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