Previous Thread
Next Thread
Print Thread
#196574 - 06/07/18 03:01 AM How long do anyone live with relapse ?  
Joined: Jun 2018
Posts: 3
Ac56 Offline
Ac56  Offline

Joined: Jun 2018
Posts: 3
My wife had grade 1 oscc in oral cavity and was surgically operated with lymph nodes removal and neck dissection, even though it had not invaded the nodes. It was in 2014. In 2018/may during oral rehab, a small wound possibly caused by a broken tooth, was detected close to the previous site. Was surgically removed and found to be gr1 oscc,but no lymph node spread or spread in adjoining tissues. I am apprehensive of her survival.

#196579 - 06/07/18 01:39 PM Re: How long do anyone live with relapse ? [Re: Ac56]  
Joined: Oct 2012
Posts: 1,010
gmcraft Offline
"OCF Canuck"
gmcraft  Offline
"OCF Canuck"
Patient Advocate (1000+ posts)

Joined: Oct 2012
Posts: 1,010
Toronto, Canada
Did your wife’s doctor talk about what he’s going to do for follow-up? If you read the posts on this forum, you will find that some people have reoccurrence and some people don’t. It’s something no one can predict. May I suggest you have a look at ChristineB, the forum administrator’s signature? Christine’s experience gives us all hope and the courage to carry on, one day at a time.

She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
#196580 - 06/07/18 02:51 PM Re: How long do anyone live with relapse ? [Re: Ac56]  
Joined: Jul 2012
Posts: 3,117
PaulB Offline
Patient Advocate (old timer, 2000 posts)
PaulB  Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,117
Hi Ac56!

I’ve had 7 recurrences, and still here! It will be about 4 months that i’ll be considered cancer free in five years. I had multiple surgeries, chemo, radiation and a targeted therapy to get there besides having the best doctors at CCC hospitals, and elsewhere, in my opinion.

Just never give up, educate yourself on this disease, and seek the best doctors, hospitals, and treatment you can find!

Good luck with everything!

10/09 T1N2bM0 Tonsil
11/09 Taxotere Cisplation 5-FU 6 Months Hosp
01/11 35 IMRT 70Gy 7 Weeks
06/11 30 HBO
08/11 RND PNI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 weeks Taxotere Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Removed IORT 10Gy PNI
12/13 25 Proton Therapy 50Gy 6 weeks Carboplatin
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fibular Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent

#196582 - 06/07/18 04:28 PM Re: How long do anyone live with relapse ? [Re: Ac56]  
Joined: Jun 2007
Posts: 10,148
ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,148
A recurrence is NOT a death sentence!!! Cancer is unpredictable and you just never know if it will return. Ive been diagnosed with OC three time in three years. The last being Stage IV with very low chance of survival. Somehow I beat the odds and survived which surprised even my doctors. Most patients will fare best at a comprehensive cancer center (CCC), especially when having a recurrence. If you can get her to a CCC for at the very least a second opinion it is worth the trip. Do not delay in scheduling appointments, time is of the essence. Some patients who have recurrences experience their tumor to grow quickly making it harder to treat. Some patients have been diagnosed with OC due to trauma in their mouths which sounds like what has happened in your wifes case. Regardless of what the cause was it still must be addressed and treated. If your wife only had surgery to remove her cancer then she should have both surgery and radiation as treatment options which for Stage I have great survival rates. For first time diagnosis at Stage I patients have a 90% chance of survival. I would have to guess that wouldnt be so different when talking about recurrences especially when radiation was not used the first time around.

As a caregiver, you do NOT have an easy task. Its not easy taking care of the person you love the most in this world while you see them fighting and struggling to get thru everything. Plus taking care of your normal household chores while always maintaining a cheerful, encouraging attitude in front of your patient. Thats a heck of alot on your shoulders!!! Your fears are a normal reaction, we all fear a recurrence as what we are most afraid of. Recurrences force us to think about our own mortality and then the hardest thoughts with "what if..." way of thinking. Stay busy and make sure you take some time just for you. Even a walk around the block to clear your head can help dramatically when carrying so much on your shoulders. Take time to still go out and do your regular activities as much as possible to keep your routines going which can help make this easier on both of you. We understand where you are coming from and are here to help support you both.

Wishing you and your wife all the very best!!!

List of Cancer Centers

US News Best Hospitals List

Main OCF Site, Understanding section

SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

Support OCF

Help OCF

Shop Amazon and Help OCF

Who's Online Now
2 registered members (Sara G, Tammy7272), 23 guests, and 1 spider.
Key: Admin, Global Mod, Mod
Forum Statistics
Most Online306
Aug 21st, 2016
Top Posters(All Time)
ChristineB 10,148
davidcpa 8,311
Cheryld 5,260
Brian Hill 4,743
Gary 3,552
Newest Members
Hinda, Theaterkev, lesleyshell, Liz61, KnS
11774 Registered Users
Brag Box
Powered by UBB.threads™ PHP Forum Software 7.6.0