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#196497 05-25-2018 08:47 PM
Joined: May 2018
Posts: 1
goldy Offline OP
Member
OP Offline
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Joined: May 2018
Posts: 1
Hi there,

Just wanted to introduce myself. My husband is the patient, a 66 y o who started with a lump in his throat around Labor Day 2017. Ended up being SCC HPV16+ of the supraglottus. I have joined this forum to hopefully get answers to questions he has and for moral support. Thankfully, he has made it through treatment. It's been about 5 weeks since his last rad treatment. He ended up with an NG tube and then eventually a PEG tube towards the end of treatment. I don't have a specific question yet, but I am glad I have found this forum. I am sure it will be a wealth of information and help.

Thanks!


Goldy's Wife
Husband is 66 y o male
T3N0 SCC HPV16+ supraglottus dx 01/2018
S/P 3 rounds Cisplatin 3 rounds Cytuximab 33 rounds radiation
Tx completed 04/18/2018
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
Welcome to OCF! You're in the right place for info and support to help get your husband thru his recovery. Sounds like he has been thru a rough time with first having the NG tube then a PEG. Your husband must have had problems with taking in enough and maintaining his weight.

Being a caregiver is a tough job! Make sure to squeeze some time just for you into your routine of taking care of your husband. Even taking a walk around the block sometimes is all it takes for caregivers to feel refreshed.

Hang in there, the worst of this is behind you both.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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