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#196431 05-13-2018 06:30 AM
Joined: May 2018
Posts: 10
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Joined: May 2018
Posts: 10
The spot on the side of my tongue went from "moderate dysplasia" to Stage 1 cancer in only nine weeks between biopsies. I'm amazed at how quickly that happened. Surgery is scheduled for six weeks after that latest biopsy. Is it reasonable to wait that long? I'm anxious about how much worse things could get in six weeks.


Kathy
KathleenS #196434 05-13-2018 11:25 AM
Joined: Jul 2012
Posts: 3,267
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Patient Advocate (old timer, 2000 posts)
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Joined: Jul 2012
Posts: 3,267
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Hi KathleenS,

Resonable Idk, but that is sometimes the wait depending on the facility, and availability of the doctor frown I’ve waited about that time in certain cases, but other times, waited less. The less time you wait, the better it is for prognosos. I thought they were trying to keep treatment to commense within 30 days, I forget what society it was? Another factor, was the time from surgery to end if treatment to be around 100 days that mattered too, and in cases of a long wait, they could increase the radiation dosage, so the article said.

Can you call on Monday to see if they can move up your appointments?

Is it possible to get another opinion, prefably at a ccc? That’s what I did when waiting for an opinion at one of the top ccc, and found one of their former doctors, and it was the best choice I ever made! The more opinions the better, and sometimes i had 5, but a reasonably fast decision should be made.

I hope this helps, and Happy Mother’s Day!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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