#19593 01-31-2006 03:51 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | OP  "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | I have, for the past few weeks, gone through a series of imaging tests. Last Monday I had a CT guided small needle biopsy.
Squaemus cells were present in the tissue harvested. The recent PET and Anatomical CT W/Contrast indicates tissue involved at level 4 (low next closer to clavicle) and tissue (nodes) surrounding the trachea (in chest) at the bronchial branch.
Surgery appears to be the only option. I return next Monday after all the residents, attendings, etc. Have had a chance to confer and see how to approach this neck and chest surgery. The CT indicates that the neck tissue is attached to a major artery and another major vessel.
Any Input...
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#19594 01-31-2006 04:39 AM | Joined: Jan 2006 Posts: 6 Member | | Member
Joined: Jan 2006 Posts: 6 | I too have just reveived the results of a PET scan which show several metastices in the lungs. It started in the tongue and initial sugery to remove was thought to be successful but was in transit to a spot under the jaw. Combined radio and chemo (twice daily for 7 weeks)did not kill the tumour under the jaw which now appears to be the source of metastices. I am seeing the radio-oncologist tomorrow about the options - it seems tat both radiotherapy to the lungs and surgery are options. | | |
#19595 01-31-2006 03:36 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Darrell and Frances, John is in the same boat with you. So lets fight this one together. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#19596 01-31-2006 04:50 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Darrell
It is distressing to read that you will have to undergo more treatment after what you have already been through. Very tough for you and your family.
I can't offer practical advice but I am thinking of you and wish you a successful outcome.
Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#19597 01-31-2006 06:11 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Darrell,
I, like Helen, can't offer you any advice other then to explore all options. I just wanted to offer my support.
Also, best of luck to Frances as she faces another battle.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#19598 01-31-2006 07:34 PM | Joined: Nov 2005 Posts: 306 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2005 Posts: 306 | Darrell, Like the others, I can offer no wisdom. Your treatment was much like mine. My heart goes out to you. I offer my support and prayers. Let us know what you learn from the medicos. Be strong. Tom
SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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#19599 02-01-2006 01:47 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Darrell and Frances, My heart is also with you as you face new battles. Please keep us informed as you make your decisions and let us be of what support we can here.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#19600 02-01-2006 05:06 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Amy,Darrell and Frances.
You are in our hearts and, if wishful thinking could do it, you would not be having to go through this nightmare again.
We are with you all the way guys.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#19601 02-01-2006 06:52 AM | Joined: Nov 2005 Posts: 105 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2005 Posts: 105 | Darrell, Frances and Amy,
Please know that we are thinking of you and yours as you face additional treatments. I wish nothing but the best for all of you. We're beside you every step of the way.
John
SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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#19602 02-01-2006 09:28 AM | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Aug 2005 Posts: 307 | Darrell, Frances and Amy,
We are ALL in this fight with you. Please keep us updated on how the additional treatments are going. I'm sending positive vibes to all of you. I hate this disease....
Hugs to all of you,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
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#19603 02-01-2006 10:00 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Many thanks to all of you...It is an up hill battle..Being a VA patient I am at the mercy of the government. But the upside is they get all the newest and best drugs, etc.I feel confident that all will be well, but I ain't lookin forward to this surgical thang...
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#19604 02-01-2006 03:54 PM | Joined: Jan 2006 Posts: 16 Member | | Member
Joined: Jan 2006 Posts: 16 | Well, looks like this is the week for the information....Dad too.... Surgery and radiation...They put him in the hospital 2 weeks ago due to danger of airway closure. Had a trach put in, PEG tube, and a port after his first chemo treatment. Today, we were told "he is going to die from this". Can we get SOME good news...
Darrel, Frances, Amy....Everyone
You're in our hearts too....
P.Silveira
***************
Caregiver to Dad SCC Stage III T2N1M0 left hard & soft palate, left Node Dx 8/17/05, Neck Dissection 9/6/05 clear margins, Rx 30 ended 11/9/05, Still not cancer free. + path, agressive, upcoming chemo
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#19605 02-02-2006 03:05 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | OP "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | P.Silveira:
No one on this sphere knows how or when we will die. I would say it is very unprofessional for a health care person, doctor, nurse, etc. to make such a profound and untrue statement.
To state that there is a chance he will die from this is more correct. God is the only entity that knows our fate. If God has a use for your dad he will remain, if not, he will die. It is not my intention to offend any person, sect, religion or creed. But as for me, personally, my belief on my Personal Lord and Savior, Jesus Christ, bolsters my faith in the immortality of the soul and that when I close my eyes in death,they will open again and I will be looking into the face of my savior in his glorious kingdom.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#19606 02-02-2006 06:30 AM | Joined: Jan 2006 Posts: 16 Member | | Member
Joined: Jan 2006 Posts: 16 | Thanks G.
It's just heart wrenching to hear....
I've been back and forth for two weeks and hadn't had much time to come on. Total anguish....To hear about you and the others. I carry a heavy heart...Much stregnth and healing to all.
P.Silveira
***************
Caregiver to Dad SCC Stage III T2N1M0 left hard & soft palate, left Node Dx 8/17/05, Neck Dissection 9/6/05 clear margins, Rx 30 ended 11/9/05, Still not cancer free. + path, agressive, upcoming chemo
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#19607 02-02-2006 03:44 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Darrell,
I can't imagine your proclaiming your faith would offend anyone. This board is meant to support and I imagine that your faith in our Lord is important to you right now.
I am deeply religious also, although I do refrain from referencing it on the board, but know that many of us do tons of fellowship.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#19608 02-02-2006 06:08 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | The "Good News" is that none of us is in this fight alone. Thanks to Brian and the original members of OCF, we don't have to go down this path unescorted. We have examples to follow, towers of strenght to draw from, support and loving concern to bolster us. Whatever happens at the end just happens. If you believe in God, you are going to a better place. If you believe in reincarnation, you may come back as your favorite animal. If you don't believe in anything, then it's "ashes to ashes and dust to dust". The fact is we, who have joined together here, are not alone in this fight. What a blessing and comfort for all of us. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
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#19609 02-02-2006 06:31 PM | Joined: May 2005 Posts: 497 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2005 Posts: 497 | My thoughts and prayers are with you.
Barb~
[i]"The artist, a traveler on this earth, leaves behind imperishable traces of his being." -Fran
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#19610 02-03-2006 09:03 AM | Joined: Jun 2005 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2005 Posts: 72 | Darrel and Frances -
I haven't been around the forum as long as many of you, but feel very much a part of this family. Your messages and wisdom shared here have given strength to so many - more than you'll ever know. My thoughts and prayers are with you both. Please keep us all informed.
Carol
Carol R - caregiver to hubby Ken. Stage 4, SCC, BOT. 6/05 dx, 9/25/05 last tx, 5/06 stroke. Four years cancer free! Still taking things 1 day at a time.
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#19611 02-11-2006 10:06 PM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | i am also under scrutiny,spots showing on chest xray going for C.T. scan friday. prayers needed please ....maz | | |
#19612 02-12-2006 04:32 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Maz, you have my prayers. Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#19613 02-13-2006 07:04 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Maz,
Here's hoping it is nothing. I have 'stuff' show up on my upper chest on the Xray all the time. Just left ovr gunk from the radiation.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#19614 02-14-2006 09:42 AM | Joined: Mar 2005 Posts: 54 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Mar 2005 Posts: 54 | My thoughts and prayers are with you all. God Bless and good luck in your recovery from the surgery!!!
Rick T
Stage II SCC(T2N0M0). Dx:Jan.05 Surgical removal w/Neck Dissection (nodes clear) Feb 1,2005.
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