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Joined: Jun 2013
Posts: 346
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Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
I'm not familiar with that, but I'm sure someone here has been through that ... seems like we have someone here who's been through everything! I am very sorry about your stroke. Have you got a support person or caregiver to help you through treatment and communication?

((hugs))


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
Joined: Feb 2018
Posts: 8
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Joined: Feb 2018
Posts: 8
Hi KristenS,

Thank for your quick response. I just recently searched for "brachytherapy" on this site, You for right a lot a people brachytherapy on this site. They basically stick a "straw" (for lack of a better word) thread threw in your tongue. They thread the straw through chin then is wind up the tongue, they may be use multiple straws, These straws a hollow and it allows them pin point radiation treatment so they delivered a can much very high dose a and it effects small areas. They typically use 3 - 5 treatments twice a day, They said I had a higher survival rate. It sounds to me it really hurts like hell, lol. I guess I will insist on those fentanyl patches, the strong will ones. Oxy 5m is finally losing it's effect on me. Thank you so Kristen smile I will be updated the results.

Thanks, Matt


1-29-18 T4N0M0 SCC left ventral tongue
Joined: Jun 2013
Posts: 346
Likes: 3
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jun 2013
Posts: 346
Likes: 3
Wow, that does sound ... interesting. Definitely go for the painkiller, at least so you'll have it on hand if you want it! The better they can target it, the better the results, I would imagine, and the fewer weird side effects later? That's a thought to hold on to during treatment, anyway.

Lots of hugs! I just hit my 5-year mark from my first diagnosis ... it's been a wild ride, but we've gotten through it, and we keep on keeping on.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
Joined: Feb 2018
Posts: 8
Member
OP Offline
Member

Joined: Feb 2018
Posts: 8
Hi All,

I finished 5 weeks of radiation treatments oral radiation. I am due to start to Brachytherapy 6/27. An unpleasant 7 days it will be. After that I will be cancer free, well that's the plan. To quote Burns "The best-laid plans of mice and men often go awry" hope Burns was wrong about this plan, lol.

Matt


1-29-18 T4N0M0 SCC left ventral tongue
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