| | Joined: Nov 2017 Posts: 18 Member | OP  Member
Joined: Nov 2017 Posts: 18 | Hello,
I have only been diagnosed with dysplasia and cannot imagine how brave you people are. I am currently under the watch of an oral surgeon but would feel more comfortable under the care of a doctor who has experience with dysplasia/oral cancer. Can anyone recommend a doctor in New Jersey if possible?
Thank you,
jeff | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I suggest you call your insurance company to see what is within your network. Check with any local treatment facilities or CCCs.
Our site has members from all over the world. Finding someone that lives around your area, who checks in on a regular basis, and knows a doctor for your condition isnt easy to do.
Best wishes with your search!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Hi Jeff,
I’m close to NJ. Besides your insurance co, what about Johnson Wood Medical Center, which is part of Rutgers University, and is an NCI and NCCN Cancer Center. I only see a radiation oncologist there after he transferred, but they do have their own reputable dental school too. The only other place I can recommend is Manhattan where I go. They have a number of top cancer centers namely NYU, Mt Sinai, Beth Israel-Mt Sinai, Memorial Sloan Kettering, NY Presbyterian, and a few others. NYU has their own dental school too, oral cancer division, besides their head and neck cancer department.
Good luck
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
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