| | Joined: Nov 2017 Posts: 18 Member | OP  Member
Joined: Nov 2017 Posts: 18 | Hello all,
I requested and got a report of my biopsy from my oral surgeon. My oral surgeon wants to take a wait and see approach- I'm going back to him in a month to assess and maybe get another biopsy. I however feel that the spot should be removed. I have an appointment with an ENT for Monday who also specializes in surgical oncology. Does this seem the right way? thanks
Last edited by ChristineB; 11-30-2017 07:04 PM. Reason: removed link
| | | | | Joined: Nov 2017 Posts: 18 Member | | OP Member
Joined: Nov 2017 Posts: 18 | Here's the information from my biopsy from the photo- Epithelial Dysplasia, Mild to Moderate
Close follow-up with excision and microscopic examination of any residual or recurrent lesional tissue is recommended to rule out invasive squamous cell carcinoma. | | | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi Jeff,
Sorry i’m Coming a bit late to this. Did you discuss your preference with your oral surgeon? If not, I would certainly bring it up with the ENT on Monday if I were you. Ask him about the pros and cons, especially about the merits of a total removal as there may be consequences that we lay peo_le are not aware of.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Nov 2017 Posts: 18 Member | | OP Member
Joined: Nov 2017 Posts: 18 | Thanks for answering. I did not discuss my preference with my oral surgeon but I will with the ENT. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Jeff, I suggest asking about how often dysplasia grows back. We have had quite a few here who have had it keep growing back after they remove it. As long as its not cancerous, it isnt a problem.
Good luck with your upcoming appointment.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2017 Posts: 18 Member | | OP Member
Joined: Nov 2017 Posts: 18 | Hello,
I would like to give an update. The doctor said my few areas of concern excluding my original dysplasia area were nothing to be concerned about- just irritation from sharp teeth or geographic tongue (thank god). Also, my dysplasia hasn't grown back nearly two months since my biopsy! I am following up with some oral pathologists at Rutgers dental school here because he still saw me having reservations. What was interesting was he mentioned that he was unsure if my dysplasia was caused from irritation. I know it can pop up out of nowhere but has anyone heard of it causing dysplasia? | | |
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