| Joined: Nov 2017 Posts: 18 Member | OP Member Joined: Nov 2017 Posts: 18 | Hello all, I was recently diagnosed with mild oral dysplasia under my tongue. My doctor was just as surprised as I was considering I do not drink or smoke, am young (26) and am not sexually active. We are going to watch it and I am going back in a month to assess it again. Needless to say I am nervous about this and was wondering what I should expect. The Dr. told me it as a very small chance to progress to cancer ( he told me like 2%) but I am naturally still worried.
Thanks!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Im sorry to hear of your dysplasia diagnosis. Your doc is correct, most dysplasia does not turn into cancer but sometimes it can change. By your being observant by checking it every few weeks if any changes would happen you will catch it super early. Hopefully yours will not change and you will not need any further treatment.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2017 Posts: 18 Member | OP Member Joined: Nov 2017 Posts: 18 | Thanks for the response! I'm just shocked because I have no risk factors like I mentioned.. It's just disappointing to have something always on my mind. I know I should be glad it's nothing yet but it still bothers me. | | | | Joined: Oct 2017 Posts: 6 Member | Member Joined: Oct 2017 Posts: 6 | You are doing the right things! I can understand how it causes anxiety as I also have no risk factors, but these things change, new risks develop. Keep doing what you are doing and seek help on how to deal with having it on your mind if you find it to be overwhelming. Find what works for you, eating healthy, meditation and yoga and walks seem to make me feel better.
White film on tongue biopsy was benign 4/7/17 Went for a check in October 2017, where it was found to MET SCC 10/13/17 Stag I, age42 11/13/17 partial glossectomy and rnd
| | | | Joined: Jun 2013 Posts: 346 Likes: 3 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | The 'no risk factors' thing is getting more and more common. What that really means is that there's a lot they don't know, and a lot they didn't know they didn't know. Your chances of having cancer are slim, but you wouldn't be alone if it did happen. You take care of yourself, be aware but not anxious, and know that folks here are on your side.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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