| Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Hello there, i was here a while back, almost 2 years. I had a buccal cavity biopsy on a slowly healing, recurring sore, left cheek. It turned out to be negative. For which i was so grateful. Well, now, for the last 9 months I have had a hard lump on my inside, lower lip with numbness, tingling, and swelling surrounding this hard lump. So...i have an appointment for a biopsy and ultra sound of my inner lower lip and chin on, November 30th. That was the first available appt here . I am on the waiting list for cancellations however, this is unnerving. I seem to keep having these whitish plaques, and now this hard lump.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Hi, me, replying to me☺☺ I am so frustrated with my mucosal white patches for 2 years, now this hard lump. No pain. Numbness, tingling. Sigh. I know many people are dealing with diagnoses. I am dealing with questions...after 6 major surgeries since 2009, and several major physical issues, this is so unusual. Especially going on for 2 years, white patches and this hard lump.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 7 | Welcome to the forum. I guess the long wait for the biopsy is adding to your frustration. Is it possible for your family doctor to find another doctor who can do the biopsy sooner? Does he/she see it as an urgent case and needs immediate intervention? What did the doctor advise after your biopsy last year? You said you were dealing with questions but what exactly are your questions? If you could post them, maybe someone who has had a similar experience may respond.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome back to OCF! Hopefully this time will also bring good news of being negative for cancer. The lump could be scar tissue or some other issue besides cancer. Waiting 6 weeks for a scheduled biopsy and ultrasound sounds like a long wait. Im sure you must be a nervous wreck about what your lump may be. Try your best to stay busy with projects, reading, hobbies or things that keep your mind focused, that will help pass the time until your appointment. You may also want to try getting an appointment with another qualified doctor. You never know, maybe you'll get lucky and get in much quicker someplace else.
Best wishes with everything. Please let us know how you make out. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Thank you Christine and gmcraft, I am just a little frustrated from this long weird issues with my mouth. At first , with the deep ache and burning, lip swelling and white patches, I suspected "burning mouth syndrome " due to inability to absorb vitamin b12 because of 2 major gastric surgeries. So I began a series of vitamins shots and so on. No luck... then the growth of this pea sized lump in my lower lip became noticeable to me this last month in addition to the patches and swelling and burning. I hope that this is somehow related to my gastric surgeries having caused disruption to my mucosa. I have struggled with thrush and loss of tooth enamel because of losing most of my stomach (90%) and my duodenum and part of my jejunum. So i deal with a lot of digestive/oral/pain issues a lot. I guess my questions are just not that answerable yet, just, hoping that this is some weird little scar. So thankful for this site, even though I am not an oral cancer patient, I have been so helped here.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Having been reconstructed internally 3 times in my abdominal and pelvic organs, and once externally, I know how to get through surgery,☺, reconstruction, learning to eat again after major gut/stomach reconstruction. How to keep nutrition/hydration/vitamins and minerals going in when your ability to get intake is severely compromised. Pain management, etc. This issue us a bit more frightening to me because the post surgical care, wound management, pain, nutrition/hydration issues seem so much more difficult. I know I'm borrowing trouble here. I'll stop the worry train and just express gratitude for the information, guidance and kindness I see among everyone here. Either way, there is always a path forward, this I know after working for 30 years in healthcare.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | ☺ just thinking about becoming a little more aggressive about seeing the Dr for my biopsy/ultrasound. My lower lip is a bit more swollen with continual numbness,tingling and very tender/sore with superficial red/white patches on my bumpy,swollen, bulgy problematic interior lower lip. My little hard, pea sized lump in the middle of this swollen, macerated flesh is still there too. I mean, this has been going on, really, for 9 months, so what's one more month.
But I'm very uncomfortable and eating is very difficult, almost impossible for most foods, and painful for all food and all liquid, even water. Brushing my teeth means zero toothpaste of any kind, it is excruciating. I actually have quite high pain tolerance. But, I'm losing weight now because I can not really eat. The only things I can really comfortably tolerate are premiere protein shakes. And they make my mouth hurt too. 🤤
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Well, at least my mammogram came back lovely and normal☺. Called in to check for early openings for my ultrasound, next interventions in my mouth. I am confused as to why no one seems to think that this is serious. An un healing macerated lump with swelling in my lower lip/chin seems serious to me. Before I became a psychiatric technician and worked with seriously mentally ill incarcerated felons, I worked as an LVN in hospice and before that on a CCU . With many, many CA patients, of many kinds, as well as patients with other end stage diseases. As well as chronic illnesses. With over 30 years of experience in healthcare, I am not saying I am a physician, I know enough to appreciate what I don't know, but I have a certain bit of instinct about things that "don't look right" especially when it's 2 years of "doesn't look right" and now I am losing weight. I just don't like it. My labs are fine, but metabolic issues may not yet be affected in any case. Sigh, I don't mean to complain, but I do not want to dump this on my husband as he is 17 years older than I and has type 1 diabetes and associated co-morbidities which I help him manage. I've always been the care giver, not the care reciever☺ not that I am saying that I may be now. I mean this could be auto immune, I do have a failed thyroid, it could be fungal, though it does not have that appearance, it could be scar tissue, could be...could be... I should perhaps try and access another physician for quicker tests? But crappy insurance and small town. And... as I said, if it's been 2 years, I guess 3 more weeks.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Coming down from anxiety today, this could be related to my loss of most of my stomach and 1/3 of my small intestines...really, the change in the ph of my mouth since 2009 has had enormous effect on the health of my teeth. So, stop worrying self. Keep breathing, keep doing everything available to maintain nutrition and health and effective activities of daily living. I have never been very much of a worrier, but i realized that i am, this year, the same age as my father when he developed pancreatic cancer and I became his care giver, (my mom refused to care for him, long story) I left the university of oregon school of music and went on to the Clark college school of nursing program after that...maybe that's what's going on. With in those two years of taking care of my father as he went through Pan Can, three of my uncle's died as well, lung cancer, colon cancer and stroke. Late 50's, early 60's were not good times for my family!
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | 11 days till appointment. My lower lip, interior, still macerated, swollen, numb. Still have hard central lump, about pea sized. On a lighter note, my husband and i are getting thanksgiving foodstuffs ready to prepare and deliver to our local Catholic Charities Thanksgiving town feast☺ we will cook, deliver and help serve on Thursday, so much fun. Our little town is very friendly and active in lots of support for young families and local services. We try to support local businesses and community help as much as we can. This gets us through life with joy🤗. Being retired has been a wonderful opportunity to increase my availability to give time to my community. Anyway, happy beginning of this holiday week to all here, and thank you, especially ChristineB for administrating this forum and site. With my difficulty in attempts to eat, I have been using many of the recipes shared here and I got the "magic mouthwash" recipe as well here on this site, which has helped me with my very uncomfortable mucosa. Again, thank you, and happy holiday week!!
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | I know I still do not have a diagnosis, but oh my goodness, my mouth is killing me today. The eroding flesh on the interior of my lower lip, all the way down to where it attaches at the chin. The numbness and tingling, interior and exterior of that area, the swelling of my lip and the severe discomfort. It's all so exausting. Eating, drinking and even my speech is affected. Thursday is my appointment.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Could you have thrush? That can be very painful. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Christine, unfortunately, I do not have thrush, I wish this was thrush, I know how to very easily treat that☺. I am hoping that this is a neuropathy issue, not easily treated, but I am doing everything available at this time B12, careful nutrition, avoiding activating foods, etc. But, the lumps in my lower lip area need to be biopsied, and maybe the pathology will show some weird fungal infection? Something else more easily treated than neuropathy. Or OC. As time passes, having observed and cared for many patients with CA, of many kinds, this, to me does not act like a malignant growth. But, that's just me guessing...as you say here, until there is a biopsy, there is no way of knowing. I so hesitate to take time and space from those who have diagnoses, but this is the only place where I share my concerns as I don't want to dump on my husband. Again, I am so grateful for this piece of the internet community.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Well, on my way to Santa Barbara for an ultrasound and biopsy today, finally. Its an hour from my house, but a beautiful drive with my husband.
Last edited by Retiredpsychtech; 11-30-2017 11:06 AM. Reason: Misspell, missed word!
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Thats great! You will finally find out what you are dealing with. Hopefully its non-cancerous and easily fixed after the diagnosis. Please let us know how you make out.
Best wishes!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Well, for goodness sake, I'm still on a run around. The Dr I saw felt that he could not do an adequate biopsy in my mouth so he referred me to an ENT who specialises in head and neck cancer to do the biopsy. I am actually thankful for that referral, but frustrated with the wait. I'm also seeing a dentist this Wednesday, he's doing a pandenscopy and I'm getting a good look at my teeth and gum health now, just because. And just because life is interesting, I now have a hard lump that either I just noticed, or it just appeared on the very lower, interior edge of my lower mandible, same side, right, as the outer lower lumps. So, it's actually on the floor of my mouth, but attached to my interior jaw, if that makes sense?
Last edited by Retiredpsychtech; 12-09-2017 04:09 PM.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Oh boy!!!! Im so very sorry to hear you didnt get very far with your appointment. Hang in there!!! Hopefully your referral will have been a good move and you will find yourself a great ENT who will get to the bottom of this.
Wishing you all the very best!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Thank you Christine, I appreciate your kind response☺
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Well, I am going to get this uncomfortable lump that is increasing in size every day, removed next week, and I am going to get my numb, ulcerated, thickened, lower lip, biopsied as well. By December 21, with an ENT, who specialises in head and neck cancer. In Santa Barbara.
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Wishing you all the very best with this. Please let us know what the results are. Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Oct 2017 Posts: 19 Member | OP Member Joined: Oct 2017 Posts: 19 | Well, Hello! So, X-rays and oral cancer screening at my wonderful dentist's office last week. He definitely wants that lump near my interior lower jaw removed and the ENT to biopsy the swollen, ulcerated area inside my lower lip/mucosa. Today, I go to Santa barbara to see the ENT and make my appointment to remove the lump from the floor/interior jaw of my mouth and hopefully get a biopsy (?, maybe today) on my lower lip.
Last edited by Retiredpsychtech; 12-21-2017 11:32 AM. Reason: Lol, i kept repeating my use of the word "so"
I am going in for biopsy/ultrasound of my lower lip/chin area. I have a hard lump on the interior mucosa, just below my lower lip, causing numbness, tingling, and swelling of my lower lip and other areas surrounding the hard lump. This has been going on for about 9 months. I had an oral biopsy last year but it was negative...this is strange.
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